Cargando…
Patient and public involvement: Two sides of the same coin or different coins altogether?
Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart t...
Autores principales: | , , , , |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7116097/ https://www.ncbi.nlm.nih.gov/pubmed/30957902 http://dx.doi.org/10.1111/bioe.12584 |
_version_ | 1783514194798182400 |
---|---|
author | McCoy, Matthew S. Warsh, Jonathan Rand, Leah Parker, Michael Sheehan, Mark |
author_facet | McCoy, Matthew S. Warsh, Jonathan Rand, Leah Parker, Michael Sheehan, Mark |
author_sort | McCoy, Matthew S. |
collection | PubMed |
description | Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart the familiar acronym and draw a distinction between patient and public involvement. Specifically, we argue that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. Analyzing cases from the UK, Australia, and the USA, we show how our proposed distinction can deliver much needed clarity to conversations on PPI, while guiding the development and evaluation of future PPI‐based policies. |
format | Online Article Text |
id | pubmed-7116097 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2019 |
publisher | John Wiley and Sons Inc. |
record_format | MEDLINE/PubMed |
spelling | pubmed-71160972020-09-18 Patient and public involvement: Two sides of the same coin or different coins altogether? McCoy, Matthew S. Warsh, Jonathan Rand, Leah Parker, Michael Sheehan, Mark Bioethics Original Articles Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart the familiar acronym and draw a distinction between patient and public involvement. Specifically, we argue that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. Analyzing cases from the UK, Australia, and the USA, we show how our proposed distinction can deliver much needed clarity to conversations on PPI, while guiding the development and evaluation of future PPI‐based policies. John Wiley and Sons Inc. 2019-04-08 2019-07 /pmc/articles/PMC7116097/ /pubmed/30957902 http://dx.doi.org/10.1111/bioe.12584 Text en © 2019 The Authors. Bioethics published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Original Articles McCoy, Matthew S. Warsh, Jonathan Rand, Leah Parker, Michael Sheehan, Mark Patient and public involvement: Two sides of the same coin or different coins altogether? |
title | Patient and public involvement: Two sides of the same coin or different coins altogether? |
title_full | Patient and public involvement: Two sides of the same coin or different coins altogether? |
title_fullStr | Patient and public involvement: Two sides of the same coin or different coins altogether? |
title_full_unstemmed | Patient and public involvement: Two sides of the same coin or different coins altogether? |
title_short | Patient and public involvement: Two sides of the same coin or different coins altogether? |
title_sort | patient and public involvement: two sides of the same coin or different coins altogether? |
topic | Original Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7116097/ https://www.ncbi.nlm.nih.gov/pubmed/30957902 http://dx.doi.org/10.1111/bioe.12584 |
work_keys_str_mv | AT mccoymatthews patientandpublicinvolvementtwosidesofthesamecoinordifferentcoinsaltogether AT warshjonathan patientandpublicinvolvementtwosidesofthesamecoinordifferentcoinsaltogether AT randleah patientandpublicinvolvementtwosidesofthesamecoinordifferentcoinsaltogether AT parkermichael patientandpublicinvolvementtwosidesofthesamecoinordifferentcoinsaltogether AT sheehanmark patientandpublicinvolvementtwosidesofthesamecoinordifferentcoinsaltogether |