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Patient and public involvement: Two sides of the same coin or different coins altogether?

Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart t...

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Detalles Bibliográficos
Autores principales: McCoy, Matthew S., Warsh, Jonathan, Rand, Leah, Parker, Michael, Sheehan, Mark
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7116097/
https://www.ncbi.nlm.nih.gov/pubmed/30957902
http://dx.doi.org/10.1111/bioe.12584
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author McCoy, Matthew S.
Warsh, Jonathan
Rand, Leah
Parker, Michael
Sheehan, Mark
author_facet McCoy, Matthew S.
Warsh, Jonathan
Rand, Leah
Parker, Michael
Sheehan, Mark
author_sort McCoy, Matthew S.
collection PubMed
description Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart the familiar acronym and draw a distinction between patient and public involvement. Specifically, we argue that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. Analyzing cases from the UK, Australia, and the USA, we show how our proposed distinction can deliver much needed clarity to conversations on PPI, while guiding the development and evaluation of future PPI‐based policies.
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spelling pubmed-71160972020-09-18 Patient and public involvement: Two sides of the same coin or different coins altogether? McCoy, Matthew S. Warsh, Jonathan Rand, Leah Parker, Michael Sheehan, Mark Bioethics Original Articles Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart the familiar acronym and draw a distinction between patient and public involvement. Specifically, we argue that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. Analyzing cases from the UK, Australia, and the USA, we show how our proposed distinction can deliver much needed clarity to conversations on PPI, while guiding the development and evaluation of future PPI‐based policies. John Wiley and Sons Inc. 2019-04-08 2019-07 /pmc/articles/PMC7116097/ /pubmed/30957902 http://dx.doi.org/10.1111/bioe.12584 Text en © 2019 The Authors. Bioethics published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
McCoy, Matthew S.
Warsh, Jonathan
Rand, Leah
Parker, Michael
Sheehan, Mark
Patient and public involvement: Two sides of the same coin or different coins altogether?
title Patient and public involvement: Two sides of the same coin or different coins altogether?
title_full Patient and public involvement: Two sides of the same coin or different coins altogether?
title_fullStr Patient and public involvement: Two sides of the same coin or different coins altogether?
title_full_unstemmed Patient and public involvement: Two sides of the same coin or different coins altogether?
title_short Patient and public involvement: Two sides of the same coin or different coins altogether?
title_sort patient and public involvement: two sides of the same coin or different coins altogether?
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7116097/
https://www.ncbi.nlm.nih.gov/pubmed/30957902
http://dx.doi.org/10.1111/bioe.12584
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