Cargando…
Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report
Genomic research and biobanking has undergone exponential growth in Africa and at the heart of this research is the sharing of biospecimens and associated clinical data amongst researchers in Africa and across the world. While this move towards open science is progressing, there has been a strengthe...
Autores principales: | Staunton, Ciara, Adams, Rachel, Dove, Edward S., Harriman, Natalie, Horn, Lyn, Labuschaigne, Melodie, Mulder, Nicola, Olckers, Antonel, Pope, Anne, Ramsay, Michèle, Swanepoel, Carmen, Ni Loideain, Nora, De Vries, Jantina |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
F1000 Research Limited
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7118803/ https://www.ncbi.nlm.nih.gov/pubmed/32259025 http://dx.doi.org/10.12688/aasopenres.12968.1 |
Ejemplares similares
-
Between a rock and a hard place: COVID-19 and South Africa’s response
por: Staunton, Ciara, et al.
Publicado: (2020) -
Model framework for governance of genomic research and biobanking in Africa – a content description
por: Yakubu, Aminu, et al.
Publicado: (2018) -
The governance of genomic biobank research in Africa: reframing the regulatory tilt
por: Staunton, Ciara, et al.
Publicado: (2020) -
Providing a policy framework for responsible gene drive research: an analysis of the existing governance landscape and priority areas for further research
por: Thizy, Delphine, et al.
Publicado: (2020) -
Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model
por: Tindana, Paulina, et al.
Publicado: (2019)