Diagnosing Juvenile Huntington’s Disease: An Explorative Study among Caregivers of Affected Children

Objective: To investigate the reasons for the diagnostic delay of juvenile Huntington’s disease patients in the Netherlands. Methods: This study uses interpretative phenomenological analysis. Eligible participants were parents and caregivers of juvenile Huntington’s disease patients. Results: Eight...

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Detalles Bibliográficos
Autores principales: Oosterloo, Mayke, Bijlsma, Emilia K., de Die-Smulders, Christine, Roos, Raymund A. C.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7139393/
https://www.ncbi.nlm.nih.gov/pubmed/32156063
http://dx.doi.org/10.3390/brainsci10030155

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7139393/
https://www.ncbi.nlm.nih.gov/pubmed/32156063
http://dx.doi.org/10.3390/brainsci10030155

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