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Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their parents

PURPOSE: VACTERL association is a rare and complex condition of congenital malformations, often requiring repeated surgery and entailing various physical sequelae. Due to scarcity of knowledge, the study aim was to investigate self-reported health-related quality of life (HRQoL), anxiety, depression...

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Detalles Bibliográficos
Autores principales:	Kassa, A-M., Dellenmark-Blom, M., Thorsell Cederberg, J., Engvall, G., Engstrand Lilja, H.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer International Publishing 2019
Materias:	Article
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7142056/ https://www.ncbi.nlm.nih.gov/pubmed/31741214 http://dx.doi.org/10.1007/s11136-019-02364-w

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