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Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD

This study aimed to inform understanding of how to optimise patient-perceived benefits from a breathlessness service designed for patients with moderate to very severe chronic obstructive pulmonary disease (COPD). The Westmead Breathlessness Service (WBS) trains patients to self-manage over an 8-wee...

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Autores principales: Luckett, Tim, Roberts, Mary M., Smith, Tracy, Swami, Vinita, Cho, Jin-Gun, Wheatley, John R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Nature Publishing Group UK 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7142111/
https://www.ncbi.nlm.nih.gov/pubmed/32269222
http://dx.doi.org/10.1038/s41533-020-0172-4
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author Luckett, Tim
Roberts, Mary M.
Smith, Tracy
Swami, Vinita
Cho, Jin-Gun
Wheatley, John R.
author_facet Luckett, Tim
Roberts, Mary M.
Smith, Tracy
Swami, Vinita
Cho, Jin-Gun
Wheatley, John R.
author_sort Luckett, Tim
collection PubMed
description This study aimed to inform understanding of how to optimise patient-perceived benefits from a breathlessness service designed for patients with moderate to very severe chronic obstructive pulmonary disease (COPD). The Westmead Breathlessness Service (WBS) trains patients to self-manage over an 8-week programme, with multidisciplinary input and home visits. A qualitative approach was taken, using semi-structured telephone interviews. Each transcript was globally rated as suggesting ‘significant’, ‘some’ or ‘no’ impact from WBS, and thematic analysis used an integrative approach. Forty-one consecutive participants were interviewed to reach ‘information power’. Eighteen (44%) participants reported ‘significant’ impact, 17 (41%) ‘some’ impact, and two (5%) ‘no’ impact. Improvements to breathlessness were usually in the affective and impact dimensions but, more uncommonly, also sensory-perceptual. Participants who benefited in self-esteem, confidence and motivation attributed this to one-to-one multidisciplinary coaching and home visits. Further research should test whether including/excluding more intensive programme elements based on individual need might improve cost-effectiveness.
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spelling pubmed-71421112020-04-13 Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD Luckett, Tim Roberts, Mary M. Smith, Tracy Swami, Vinita Cho, Jin-Gun Wheatley, John R. NPJ Prim Care Respir Med Article This study aimed to inform understanding of how to optimise patient-perceived benefits from a breathlessness service designed for patients with moderate to very severe chronic obstructive pulmonary disease (COPD). The Westmead Breathlessness Service (WBS) trains patients to self-manage over an 8-week programme, with multidisciplinary input and home visits. A qualitative approach was taken, using semi-structured telephone interviews. Each transcript was globally rated as suggesting ‘significant’, ‘some’ or ‘no’ impact from WBS, and thematic analysis used an integrative approach. Forty-one consecutive participants were interviewed to reach ‘information power’. Eighteen (44%) participants reported ‘significant’ impact, 17 (41%) ‘some’ impact, and two (5%) ‘no’ impact. Improvements to breathlessness were usually in the affective and impact dimensions but, more uncommonly, also sensory-perceptual. Participants who benefited in self-esteem, confidence and motivation attributed this to one-to-one multidisciplinary coaching and home visits. Further research should test whether including/excluding more intensive programme elements based on individual need might improve cost-effectiveness. Nature Publishing Group UK 2020-04-08 /pmc/articles/PMC7142111/ /pubmed/32269222 http://dx.doi.org/10.1038/s41533-020-0172-4 Text en © The Author(s) 2020 Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/.
spellingShingle Article
Luckett, Tim
Roberts, Mary M.
Smith, Tracy
Swami, Vinita
Cho, Jin-Gun
Wheatley, John R.
Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD
title Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD
title_full Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD
title_fullStr Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD
title_full_unstemmed Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD
title_short Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD
title_sort patient perspectives on how to optimise benefits from a breathlessness service for people with copd
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7142111/
https://www.ncbi.nlm.nih.gov/pubmed/32269222
http://dx.doi.org/10.1038/s41533-020-0172-4
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