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A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study

Purpose: Adults with cerebral palsy experience challenges related to lifelong disability, such as stress, fatigue, pain and emotional issues. E-health services can be delivered regardless of residence and level of functioning. The aim of this pilot study was to explore the potential benefits and fea...

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Autores principales: Høye, Helene, Jahnsen, Reidun Birgitta, Løvstad, Marianne, Hartveit, Jeanette Folkvord, Sørli, Hilde, Tornås, Sveinung, Månum, Grethe
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7146892/
https://www.ncbi.nlm.nih.gov/pubmed/32318010
http://dx.doi.org/10.3389/fneur.2020.00195
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author Høye, Helene
Jahnsen, Reidun Birgitta
Løvstad, Marianne
Hartveit, Jeanette Folkvord
Sørli, Hilde
Tornås, Sveinung
Månum, Grethe
author_facet Høye, Helene
Jahnsen, Reidun Birgitta
Løvstad, Marianne
Hartveit, Jeanette Folkvord
Sørli, Hilde
Tornås, Sveinung
Månum, Grethe
author_sort Høye, Helene
collection PubMed
description Purpose: Adults with cerebral palsy experience challenges related to lifelong disability, such as stress, fatigue, pain and emotional issues. E-health services can be delivered regardless of residence and level of functioning. The aim of this pilot study was to explore the potential benefits and feasibility of a mindfulness-based program delivered to adults with cerebral palsy via group video conferencing. Methods: Six adults with cerebral palsy received an 8 week mindfulness group-based program via video conferencing. A multiple single-case study design was applied, including quantitative and qualitative elements. Pain was assessed 16 times through the study period. Questionnaires were administered to gather data on pain catastrophizing, stress, fatigue, emotional distress, positive and negative affect, and quality of life. A focus group interview addressed experiences with the intervention and the mode of delivery. Results: The participants' pain levels showed varied trajectories. Pain catastrophizing and negative affect were statistically significant decreased. Qualitative data indicated benefits from mindfulness in coping and stress management. The video conferencing delivery was evaluated as feasible, with no major adverse effects. Conclusion: Since the pilot study had a small sample size, potential treatment benefits should be interpreted with caution. However, this pilot study provides important information in the planning of future larger and controlled studies on mindfulness-based interventions programs via video conferencing for adults with cerebral palsy and other persons living with long-term disability.
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spelling pubmed-71468922020-04-21 A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study Høye, Helene Jahnsen, Reidun Birgitta Løvstad, Marianne Hartveit, Jeanette Folkvord Sørli, Hilde Tornås, Sveinung Månum, Grethe Front Neurol Neurology Purpose: Adults with cerebral palsy experience challenges related to lifelong disability, such as stress, fatigue, pain and emotional issues. E-health services can be delivered regardless of residence and level of functioning. The aim of this pilot study was to explore the potential benefits and feasibility of a mindfulness-based program delivered to adults with cerebral palsy via group video conferencing. Methods: Six adults with cerebral palsy received an 8 week mindfulness group-based program via video conferencing. A multiple single-case study design was applied, including quantitative and qualitative elements. Pain was assessed 16 times through the study period. Questionnaires were administered to gather data on pain catastrophizing, stress, fatigue, emotional distress, positive and negative affect, and quality of life. A focus group interview addressed experiences with the intervention and the mode of delivery. Results: The participants' pain levels showed varied trajectories. Pain catastrophizing and negative affect were statistically significant decreased. Qualitative data indicated benefits from mindfulness in coping and stress management. The video conferencing delivery was evaluated as feasible, with no major adverse effects. Conclusion: Since the pilot study had a small sample size, potential treatment benefits should be interpreted with caution. However, this pilot study provides important information in the planning of future larger and controlled studies on mindfulness-based interventions programs via video conferencing for adults with cerebral palsy and other persons living with long-term disability. Frontiers Media S.A. 2020-04-03 /pmc/articles/PMC7146892/ /pubmed/32318010 http://dx.doi.org/10.3389/fneur.2020.00195 Text en Copyright © 2020 Høye, Jahnsen, Løvstad, Hartveit, Sørli, Tornås and Månum. http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Neurology
Høye, Helene
Jahnsen, Reidun Birgitta
Løvstad, Marianne
Hartveit, Jeanette Folkvord
Sørli, Hilde
Tornås, Sveinung
Månum, Grethe
A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study
title A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study
title_full A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study
title_fullStr A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study
title_full_unstemmed A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study
title_short A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study
title_sort mindfulness-based stress reduction program via group video conferencing for adults with cerebral palsy – a pilot study
topic Neurology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7146892/
https://www.ncbi.nlm.nih.gov/pubmed/32318010
http://dx.doi.org/10.3389/fneur.2020.00195
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