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Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies

BACKGROUND: Research Electronic Data Capture (REDCap) is a secure, web-based electronic data capture application for building and managing surveys and databases. It can also be used for study management, data transfer, and data export into a variety of statistical programs. REDcap was developed and...

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Autores principales: Gesell, Sabina B., Halladay, Jacqueline R., Mettam, Laurie H., Sissine, Mysha E., Staplefoote-Boynton, B. Lynette, Duncan, Pamela W.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Cambridge University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7159814/
https://www.ncbi.nlm.nih.gov/pubmed/32313700
http://dx.doi.org/10.1017/cts.2019.444
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author Gesell, Sabina B.
Halladay, Jacqueline R.
Mettam, Laurie H.
Sissine, Mysha E.
Staplefoote-Boynton, B. Lynette
Duncan, Pamela W.
author_facet Gesell, Sabina B.
Halladay, Jacqueline R.
Mettam, Laurie H.
Sissine, Mysha E.
Staplefoote-Boynton, B. Lynette
Duncan, Pamela W.
author_sort Gesell, Sabina B.
collection PubMed
description BACKGROUND: Research Electronic Data Capture (REDCap) is a secure, web-based electronic data capture application for building and managing surveys and databases. It can also be used for study management, data transfer, and data export into a variety of statistical programs. REDcap was developed and supported by the National Center for Advancing Translational Sciences Program and is used in over 3700 institutions worldwide. It can also be used to track and measure stakeholder engagement, an integral element of research funded by the Patient-Centered Outcomes Research Institute (PCORI). Continuously and accurately tracking and reporting on stakeholder engagement activities throughout the life of a PCORI-funded trial can be challenging, particularly in complex trials with multiple types of engagement. METHODS: In this paper, we show our approach for collecting and capturing stakeholder engagement activities using a shareable REDCap tool in one of the PCORI’s first large pragmatic clinical trials (the Comprehensive Post-Acute Stroke Services) to inform other investigators planning cluster-randomized pragmatic trials. Benefits and challenges are highlighted for researchers seeking to consistently monitor and measure stakeholder engagement. CONCLUSIONS: We describe how REDCap can provide a time-saving approach to capturing how stakeholders engage in a PCORI-funded study and reporting how stakeholders influenced the study in progress reports back to PCORI.
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spelling pubmed-71598142020-04-20 Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies Gesell, Sabina B. Halladay, Jacqueline R. Mettam, Laurie H. Sissine, Mysha E. Staplefoote-Boynton, B. Lynette Duncan, Pamela W. J Clin Transl Sci Research Article BACKGROUND: Research Electronic Data Capture (REDCap) is a secure, web-based electronic data capture application for building and managing surveys and databases. It can also be used for study management, data transfer, and data export into a variety of statistical programs. REDcap was developed and supported by the National Center for Advancing Translational Sciences Program and is used in over 3700 institutions worldwide. It can also be used to track and measure stakeholder engagement, an integral element of research funded by the Patient-Centered Outcomes Research Institute (PCORI). Continuously and accurately tracking and reporting on stakeholder engagement activities throughout the life of a PCORI-funded trial can be challenging, particularly in complex trials with multiple types of engagement. METHODS: In this paper, we show our approach for collecting and capturing stakeholder engagement activities using a shareable REDCap tool in one of the PCORI’s first large pragmatic clinical trials (the Comprehensive Post-Acute Stroke Services) to inform other investigators planning cluster-randomized pragmatic trials. Benefits and challenges are highlighted for researchers seeking to consistently monitor and measure stakeholder engagement. CONCLUSIONS: We describe how REDCap can provide a time-saving approach to capturing how stakeholders engage in a PCORI-funded study and reporting how stakeholders influenced the study in progress reports back to PCORI. Cambridge University Press 2020-02-06 /pmc/articles/PMC7159814/ /pubmed/32313700 http://dx.doi.org/10.1017/cts.2019.444 Text en © The Association for Clinical and Translational Science 2020 http://creativecommons.org/licenses/by/4.0/ This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Article
Gesell, Sabina B.
Halladay, Jacqueline R.
Mettam, Laurie H.
Sissine, Mysha E.
Staplefoote-Boynton, B. Lynette
Duncan, Pamela W.
Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies
title Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies
title_full Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies
title_fullStr Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies
title_full_unstemmed Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies
title_short Using REDCap to track stakeholder engagement: A time-saving tool for PCORI-funded studies
title_sort using redcap to track stakeholder engagement: a time-saving tool for pcori-funded studies
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7159814/
https://www.ncbi.nlm.nih.gov/pubmed/32313700
http://dx.doi.org/10.1017/cts.2019.444
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