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Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology

BACKGROUND: For children and adolescents with cancer, going back to school is a key milestone in returning to “normal life.” PURPOSE: To identify the support vital for a successful transition, we evaluated the parents’ needs and the challenges they face when their children return to school. METHODS:...

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Autores principales: Lee, Jun Ah, Lee, Jae Min, Park, Hyeon Jin, Park, Meerim, Park, Byung Kiu, Ju, Hee Young, Kim, Ji Yoon, Park, Sang Kyu, Lee, Young Ho, Shim, Ye Jee, Kim, Heung Sik, Park, Kyung Duk, Lim, Yeon-Jung, Chueh, Hee Won, Park, Ji Kyoung, Kim, Soon Ki, Choi, Hyoung Soo, Ahn, Hyo Seop, Hah, Jeong Ok, Kang, Hyoung Jin, Shin, Hee Young, Lee, Mee Jeong
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Korean Pediatric Society 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7170787/
https://www.ncbi.nlm.nih.gov/pubmed/32024325
http://dx.doi.org/10.3345/kjp.2019.00696
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author Lee, Jun Ah
Lee, Jae Min
Park, Hyeon Jin
Park, Meerim
Park, Byung Kiu
Ju, Hee Young
Kim, Ji Yoon
Park, Sang Kyu
Lee, Young Ho
Shim, Ye Jee
Kim, Heung Sik
Park, Kyung Duk
Lim, Yeon-Jung
Chueh, Hee Won
Park, Ji Kyoung
Kim, Soon Ki
Choi, Hyoung Soo
Ahn, Hyo Seop
Hah, Jeong Ok
Kang, Hyoung Jin
Shin, Hee Young
Lee, Mee Jeong
author_facet Lee, Jun Ah
Lee, Jae Min
Park, Hyeon Jin
Park, Meerim
Park, Byung Kiu
Ju, Hee Young
Kim, Ji Yoon
Park, Sang Kyu
Lee, Young Ho
Shim, Ye Jee
Kim, Heung Sik
Park, Kyung Duk
Lim, Yeon-Jung
Chueh, Hee Won
Park, Ji Kyoung
Kim, Soon Ki
Choi, Hyoung Soo
Ahn, Hyo Seop
Hah, Jeong Ok
Kang, Hyoung Jin
Shin, Hee Young
Lee, Mee Jeong
author_sort Lee, Jun Ah
collection PubMed
description BACKGROUND: For children and adolescents with cancer, going back to school is a key milestone in returning to “normal life.” PURPOSE: To identify the support vital for a successful transition, we evaluated the parents’ needs and the challenges they face when their children return to school. METHODS: This multi-institutional study was conducted by the Korean Society of Pediatric Hematology and Oncology. The written survey comprised 24 questions and was completed by 210 parents without an interviewer. RESULTS: Most parents (165 of 206) reported that their children experienced difficulties with physical status (n=60), peer relationships (n=30), academic performance (n=27), emotional/behavioral issues (n=11), and relationships with teachers (n=4) on reentering school. Parents wanted to be kept informed about and remain involved in their children’s school lives and reported good parent-teacher communication (88 of 209, 42.1%). Parents reported that 83.1% and 44.9% of teachers and peers, respectively, displayed an adequate understanding of their children’s condition. Most parents (197 of 208) answered that a special program is necessary to facilitate return to school after cancer therapy that offers emotional support (n=85), facilitates social adaptation (n=61), and provides tutoring to accelerate catch up (n=56), and continued health care by hospital outreach and school personnel (n=50). CONCLUSION: In addition to scholastic aptitude-oriented programs, emotional and psychosocial support is necessary for a successful return to school. Pediatric oncologists should actively improve oncology practices to better integrate individualized school plans and educate peers and teachers to improve health literacy to aid them in understanding the needs of children with cancer.
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spelling pubmed-71707872020-04-23 Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology Lee, Jun Ah Lee, Jae Min Park, Hyeon Jin Park, Meerim Park, Byung Kiu Ju, Hee Young Kim, Ji Yoon Park, Sang Kyu Lee, Young Ho Shim, Ye Jee Kim, Heung Sik Park, Kyung Duk Lim, Yeon-Jung Chueh, Hee Won Park, Ji Kyoung Kim, Soon Ki Choi, Hyoung Soo Ahn, Hyo Seop Hah, Jeong Ok Kang, Hyoung Jin Shin, Hee Young Lee, Mee Jeong Clin Exp Pediatr Original Article BACKGROUND: For children and adolescents with cancer, going back to school is a key milestone in returning to “normal life.” PURPOSE: To identify the support vital for a successful transition, we evaluated the parents’ needs and the challenges they face when their children return to school. METHODS: This multi-institutional study was conducted by the Korean Society of Pediatric Hematology and Oncology. The written survey comprised 24 questions and was completed by 210 parents without an interviewer. RESULTS: Most parents (165 of 206) reported that their children experienced difficulties with physical status (n=60), peer relationships (n=30), academic performance (n=27), emotional/behavioral issues (n=11), and relationships with teachers (n=4) on reentering school. Parents wanted to be kept informed about and remain involved in their children’s school lives and reported good parent-teacher communication (88 of 209, 42.1%). Parents reported that 83.1% and 44.9% of teachers and peers, respectively, displayed an adequate understanding of their children’s condition. Most parents (197 of 208) answered that a special program is necessary to facilitate return to school after cancer therapy that offers emotional support (n=85), facilitates social adaptation (n=61), and provides tutoring to accelerate catch up (n=56), and continued health care by hospital outreach and school personnel (n=50). CONCLUSION: In addition to scholastic aptitude-oriented programs, emotional and psychosocial support is necessary for a successful return to school. Pediatric oncologists should actively improve oncology practices to better integrate individualized school plans and educate peers and teachers to improve health literacy to aid them in understanding the needs of children with cancer. Korean Pediatric Society 2019-11-14 /pmc/articles/PMC7170787/ /pubmed/32024325 http://dx.doi.org/10.3345/kjp.2019.00696 Text en Copyright © 2020 by The Korean Pediatric Society This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Article
Lee, Jun Ah
Lee, Jae Min
Park, Hyeon Jin
Park, Meerim
Park, Byung Kiu
Ju, Hee Young
Kim, Ji Yoon
Park, Sang Kyu
Lee, Young Ho
Shim, Ye Jee
Kim, Heung Sik
Park, Kyung Duk
Lim, Yeon-Jung
Chueh, Hee Won
Park, Ji Kyoung
Kim, Soon Ki
Choi, Hyoung Soo
Ahn, Hyo Seop
Hah, Jeong Ok
Kang, Hyoung Jin
Shin, Hee Young
Lee, Mee Jeong
Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology
title Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology
title_full Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology
title_fullStr Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology
title_full_unstemmed Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology
title_short Korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology
title_sort korean parents’ perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by korean society of pediatric hematology and oncology
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7170787/
https://www.ncbi.nlm.nih.gov/pubmed/32024325
http://dx.doi.org/10.3345/kjp.2019.00696
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