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An annotated and critical glossary of the terminology of inclusion in healthcare and health research
The importance of including members of the public has been accorded a significant position in health planning, service delivery and research. But this position masks a lack of clarity about terms that are used. This paper identifies terms that are in common use in the lexicon of community based invo...
Autores principales: | , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7171766/ https://www.ncbi.nlm.nih.gov/pubmed/32337067 http://dx.doi.org/10.1186/s40900-020-00186-6 |
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author | Islam, Shahid Small, Neil |
author_facet | Islam, Shahid Small, Neil |
author_sort | Islam, Shahid |
collection | PubMed |
description | The importance of including members of the public has been accorded a significant position in health planning, service delivery and research. But this position masks a lack of clarity about terms that are used. This paper identifies terms that are in common use in the lexicon of community based involvement and engagement in health with the intention of clarifying meaning and thus reducing ambiguity. We define and distinguish between key terms related to inclusion, we consider the terminology attached to community processes and to the challenges of inclusion and we engage with the strengths and weaknesses of the commonly used metaphor of “a ladder of participation”. We wish to contribute to the clear communication of intentions, challenges and achievements in pursuing varied forms of inclusion in health. |
format | Online Article Text |
id | pubmed-7171766 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-71717662020-04-24 An annotated and critical glossary of the terminology of inclusion in healthcare and health research Islam, Shahid Small, Neil Res Involv Engagem Commentary The importance of including members of the public has been accorded a significant position in health planning, service delivery and research. But this position masks a lack of clarity about terms that are used. This paper identifies terms that are in common use in the lexicon of community based involvement and engagement in health with the intention of clarifying meaning and thus reducing ambiguity. We define and distinguish between key terms related to inclusion, we consider the terminology attached to community processes and to the challenges of inclusion and we engage with the strengths and weaknesses of the commonly used metaphor of “a ladder of participation”. We wish to contribute to the clear communication of intentions, challenges and achievements in pursuing varied forms of inclusion in health. BioMed Central 2020-04-20 /pmc/articles/PMC7171766/ /pubmed/32337067 http://dx.doi.org/10.1186/s40900-020-00186-6 Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Commentary Islam, Shahid Small, Neil An annotated and critical glossary of the terminology of inclusion in healthcare and health research |
title | An annotated and critical glossary of the terminology of inclusion in healthcare and health research |
title_full | An annotated and critical glossary of the terminology of inclusion in healthcare and health research |
title_fullStr | An annotated and critical glossary of the terminology of inclusion in healthcare and health research |
title_full_unstemmed | An annotated and critical glossary of the terminology of inclusion in healthcare and health research |
title_short | An annotated and critical glossary of the terminology of inclusion in healthcare and health research |
title_sort | annotated and critical glossary of the terminology of inclusion in healthcare and health research |
topic | Commentary |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7171766/ https://www.ncbi.nlm.nih.gov/pubmed/32337067 http://dx.doi.org/10.1186/s40900-020-00186-6 |
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