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A quality of life questionnaire for patients with scapula alata (SA-Q): development and validation

BACKGROUND: No quality of life (QoL) questionnaire exists for patients with scapula alata (SA). The objective of this study was to develop and validate a QoL questionnaire for SA patients. METHODS: A team consisting of experts (n = 7) and SA patients (n = 7) developed, through five continuous phases...

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Autores principales: Tibaek, Sigrid, Gadsboell, Janne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7175495/
https://www.ncbi.nlm.nih.gov/pubmed/32316945
http://dx.doi.org/10.1186/s12891-020-03284-4
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author Tibaek, Sigrid
Gadsboell, Janne
author_facet Tibaek, Sigrid
Gadsboell, Janne
author_sort Tibaek, Sigrid
collection PubMed
description BACKGROUND: No quality of life (QoL) questionnaire exists for patients with scapula alata (SA). The objective of this study was to develop and validate a QoL questionnaire for SA patients. METHODS: A team consisting of experts (n = 7) and SA patients (n = 7) developed, through five continuous phases, a QoL questionnaire for SA patients (SA-Q). The developed questionnaire consists of 21 items, grouped in five domains: physical symptoms (five items), work (four items), sport and leisure activities (four items), life style (four items) and emotions (four items). Content and face validity for the SA-Q questionnaire were evaluated by a sample of 48 (90%) out of 53 SA patients recruited from a university hospital. The Content Validity Index (CVI) and modified kappa index (κ*) assessed the relevance of SA-Q questionnaire. RESULTS: The SA patients evaluated 20 (95%) out of 21 items as excellent for content validity (I-CVI > 0.78, κ* > 0.74), one (5%) item was considered as good (I-CVI < 0.78, 0.60 < κ* < 0.74). The average scale (S-CVI/ave) for the entire SA-Q questionnaire was 0.93 indicating an excellent content validity. CONCLUSIONS: This study presents the development and validation of content validity of the first QoL questionnaire for SA patients. The SA-Q questionnaire has potential clinical implications for detected changes concerning the different items during rehabilitation. CLINICAL TRIALS: Not relevant.
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spelling pubmed-71754952020-04-24 A quality of life questionnaire for patients with scapula alata (SA-Q): development and validation Tibaek, Sigrid Gadsboell, Janne BMC Musculoskelet Disord Research Article BACKGROUND: No quality of life (QoL) questionnaire exists for patients with scapula alata (SA). The objective of this study was to develop and validate a QoL questionnaire for SA patients. METHODS: A team consisting of experts (n = 7) and SA patients (n = 7) developed, through five continuous phases, a QoL questionnaire for SA patients (SA-Q). The developed questionnaire consists of 21 items, grouped in five domains: physical symptoms (five items), work (four items), sport and leisure activities (four items), life style (four items) and emotions (four items). Content and face validity for the SA-Q questionnaire were evaluated by a sample of 48 (90%) out of 53 SA patients recruited from a university hospital. The Content Validity Index (CVI) and modified kappa index (κ*) assessed the relevance of SA-Q questionnaire. RESULTS: The SA patients evaluated 20 (95%) out of 21 items as excellent for content validity (I-CVI > 0.78, κ* > 0.74), one (5%) item was considered as good (I-CVI < 0.78, 0.60 < κ* < 0.74). The average scale (S-CVI/ave) for the entire SA-Q questionnaire was 0.93 indicating an excellent content validity. CONCLUSIONS: This study presents the development and validation of content validity of the first QoL questionnaire for SA patients. The SA-Q questionnaire has potential clinical implications for detected changes concerning the different items during rehabilitation. CLINICAL TRIALS: Not relevant. BioMed Central 2020-04-21 /pmc/articles/PMC7175495/ /pubmed/32316945 http://dx.doi.org/10.1186/s12891-020-03284-4 Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Research Article
Tibaek, Sigrid
Gadsboell, Janne
A quality of life questionnaire for patients with scapula alata (SA-Q): development and validation
title A quality of life questionnaire for patients with scapula alata (SA-Q): development and validation
title_full A quality of life questionnaire for patients with scapula alata (SA-Q): development and validation
title_fullStr A quality of life questionnaire for patients with scapula alata (SA-Q): development and validation
title_full_unstemmed A quality of life questionnaire for patients with scapula alata (SA-Q): development and validation
title_short A quality of life questionnaire for patients with scapula alata (SA-Q): development and validation
title_sort quality of life questionnaire for patients with scapula alata (sa-q): development and validation
topic Research Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7175495/
https://www.ncbi.nlm.nih.gov/pubmed/32316945
http://dx.doi.org/10.1186/s12891-020-03284-4
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