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Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice
BACKGROUND: Developing recommendations for how we deliver healthcare is often left to leading experts in a field. Findings from the Integrated Palliative Care in cancer and chronic conditions (InSup-C) study, which aimed to identify best practice in integrated palliative care in cancer, chronic obst...
Autores principales: | , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7178937/ https://www.ncbi.nlm.nih.gov/pubmed/32321491 http://dx.doi.org/10.1186/s12904-020-00564-7 |
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author | Preston, Nancy Hasselaar, Jeroen Hughes, Sean Kaley, Alex Linge-Dahl, Lisa Radvanyi, Ildiko Tubman, Phil Van Beek, Karen Varey, Sandra Payne, Sheila |
author_facet | Preston, Nancy Hasselaar, Jeroen Hughes, Sean Kaley, Alex Linge-Dahl, Lisa Radvanyi, Ildiko Tubman, Phil Van Beek, Karen Varey, Sandra Payne, Sheila |
author_sort | Preston, Nancy |
collection | PubMed |
description | BACKGROUND: Developing recommendations for how we deliver healthcare is often left to leading experts in a field. Findings from the Integrated Palliative Care in cancer and chronic conditions (InSup-C) study, which aimed to identify best practice in integrated palliative care in cancer, chronic obstructive pulmonary disease (COPD) and heart failure, led to recommendations developed through an expert consultation process. We also wanted to develop these recommendations further with participants who were largely clinicians and members of the public. METHODS: Results from the InSup-C study were disseminated through a three-week massive open online course (MOOC) which ran in 2016, 2017 and 2019. The first course helped develop the final recommendations, which were ranked by MOOC participants in the subsequent courses. MOOC participants were predominantly clinicians, but also academics and members of the public. They rated how important each recommendation was on a 9 point scale (9 most important). Descriptive statistics were used to analyse the ratings. The results were compared to findings from the consultation. RESULTS: Five hundred fifteen completed the last part of the course where the recommendations were ranked, of which 195 (38%) completed the ratings. The top recommendations related to: need to expand palliative care to non-malignant conditions; palliative care needs to include different dimensions of care including physical, psychological and spiritual; policies and regulations assessments should be made regularly; palliative care integration should be mandatory; and there should be greater availability of medicines. These differed compared to the top ranked recommendations by the consultation panel in relation to the importance of leadership and policy making. This may indicate that clinicians are more focused on daily care rather than the (inter) national agenda. CONCLUSIONS: Whilst both sets of recommendations are important, our study shows that we need to include the views of clinicians and the public rather than rely upon leading expert opinion alone. To keep recommendations fresh we need both the input of clinicians, the public and experts. When disseminating findings, MOOCs offer a useful way to gain greater reach with clinicians and the public, and importantly could be a vehicle to validate recommendations made by leading expert panels. |
format | Online Article Text |
id | pubmed-7178937 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | BioMed Central |
record_format | MEDLINE/PubMed |
spelling | pubmed-71789372020-04-26 Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice Preston, Nancy Hasselaar, Jeroen Hughes, Sean Kaley, Alex Linge-Dahl, Lisa Radvanyi, Ildiko Tubman, Phil Van Beek, Karen Varey, Sandra Payne, Sheila BMC Palliat Care Research Article BACKGROUND: Developing recommendations for how we deliver healthcare is often left to leading experts in a field. Findings from the Integrated Palliative Care in cancer and chronic conditions (InSup-C) study, which aimed to identify best practice in integrated palliative care in cancer, chronic obstructive pulmonary disease (COPD) and heart failure, led to recommendations developed through an expert consultation process. We also wanted to develop these recommendations further with participants who were largely clinicians and members of the public. METHODS: Results from the InSup-C study were disseminated through a three-week massive open online course (MOOC) which ran in 2016, 2017 and 2019. The first course helped develop the final recommendations, which were ranked by MOOC participants in the subsequent courses. MOOC participants were predominantly clinicians, but also academics and members of the public. They rated how important each recommendation was on a 9 point scale (9 most important). Descriptive statistics were used to analyse the ratings. The results were compared to findings from the consultation. RESULTS: Five hundred fifteen completed the last part of the course where the recommendations were ranked, of which 195 (38%) completed the ratings. The top recommendations related to: need to expand palliative care to non-malignant conditions; palliative care needs to include different dimensions of care including physical, psychological and spiritual; policies and regulations assessments should be made regularly; palliative care integration should be mandatory; and there should be greater availability of medicines. These differed compared to the top ranked recommendations by the consultation panel in relation to the importance of leadership and policy making. This may indicate that clinicians are more focused on daily care rather than the (inter) national agenda. CONCLUSIONS: Whilst both sets of recommendations are important, our study shows that we need to include the views of clinicians and the public rather than rely upon leading expert opinion alone. To keep recommendations fresh we need both the input of clinicians, the public and experts. When disseminating findings, MOOCs offer a useful way to gain greater reach with clinicians and the public, and importantly could be a vehicle to validate recommendations made by leading expert panels. BioMed Central 2020-04-22 /pmc/articles/PMC7178937/ /pubmed/32321491 http://dx.doi.org/10.1186/s12904-020-00564-7 Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data. |
spellingShingle | Research Article Preston, Nancy Hasselaar, Jeroen Hughes, Sean Kaley, Alex Linge-Dahl, Lisa Radvanyi, Ildiko Tubman, Phil Van Beek, Karen Varey, Sandra Payne, Sheila Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice |
title | Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice |
title_full | Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice |
title_fullStr | Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice |
title_full_unstemmed | Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice |
title_short | Disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice |
title_sort | disseminating research findings using a massive online open course for maximising impact and developing recommendations for practice |
topic | Research Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7178937/ https://www.ncbi.nlm.nih.gov/pubmed/32321491 http://dx.doi.org/10.1186/s12904-020-00564-7 |
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