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Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic

The novel coronavirus disease 2019 infection poses serious challenges to the healthcare system that are being addressed through the creation of new unique and advanced systems of care with disjointed care processes (eg, telehealth screening, drive-through specimen collection, remote testing, telehea...

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Detalles Bibliográficos
Autores principales: Lenert, Leslie, McSwain, Brooke Yeager
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7184334/
https://www.ncbi.nlm.nih.gov/pubmed/32232432
http://dx.doi.org/10.1093/jamia/ocaa039
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author Lenert, Leslie
McSwain, Brooke Yeager
author_facet Lenert, Leslie
McSwain, Brooke Yeager
author_sort Lenert, Leslie
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description The novel coronavirus disease 2019 infection poses serious challenges to the healthcare system that are being addressed through the creation of new unique and advanced systems of care with disjointed care processes (eg, telehealth screening, drive-through specimen collection, remote testing, telehealth management). However, our current regulations on the flows of information for clinical care and research are antiquated and often conflict at the state and federal levels. We discuss proposed changes to privacy regulations such as the Health Insurance Portability and Accountability Act designed to let health information seamlessly and frictionlessly flow among the health entities that need to collaborate on treatment of patients and, also, allow it to flow to researchers trying to understand how to limit its impacts.
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spelling pubmed-71843342020-04-29 Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic Lenert, Leslie McSwain, Brooke Yeager J Am Med Inform Assoc Perspective The novel coronavirus disease 2019 infection poses serious challenges to the healthcare system that are being addressed through the creation of new unique and advanced systems of care with disjointed care processes (eg, telehealth screening, drive-through specimen collection, remote testing, telehealth management). However, our current regulations on the flows of information for clinical care and research are antiquated and often conflict at the state and federal levels. We discuss proposed changes to privacy regulations such as the Health Insurance Portability and Accountability Act designed to let health information seamlessly and frictionlessly flow among the health entities that need to collaborate on treatment of patients and, also, allow it to flow to researchers trying to understand how to limit its impacts. Oxford University Press 2020-04-26 /pmc/articles/PMC7184334/ /pubmed/32232432 http://dx.doi.org/10.1093/jamia/ocaa039 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of the American Medical Informatics Association. http://creativecommons.org/licenses/by-nc-nd/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs licence (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial reproduction and distribution of the work, in any medium, provided the original work is not altered or transformed in any way, and that the work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Perspective
Lenert, Leslie
McSwain, Brooke Yeager
Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic
title Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic
title_full Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic
title_fullStr Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic
title_full_unstemmed Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic
title_short Balancing health privacy, health information exchange, and research in the context of the COVID-19 pandemic
title_sort balancing health privacy, health information exchange, and research in the context of the covid-19 pandemic
topic Perspective
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7184334/
https://www.ncbi.nlm.nih.gov/pubmed/32232432
http://dx.doi.org/10.1093/jamia/ocaa039
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