Cargando…

Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities

The majority of people living with dementia reside in the community and are often reliant on the support of informal carers to do so. Family carers face many challenges in supporting the person with dementia to remain at home, and short‐term respite care is a valued service that offers a temporary b...

Descripción completa

Detalles Bibliográficos
Autores principales: Harkin, Damian J., O'Connor, Claire M. C., Birch, Mary‐Rose, Poulos, Christopher J.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7187172/
https://www.ncbi.nlm.nih.gov/pubmed/31863540
http://dx.doi.org/10.1111/hsc.12916
_version_ 1783527117351288832
author Harkin, Damian J.
O'Connor, Claire M. C.
Birch, Mary‐Rose
Poulos, Christopher J.
author_facet Harkin, Damian J.
O'Connor, Claire M. C.
Birch, Mary‐Rose
Poulos, Christopher J.
author_sort Harkin, Damian J.
collection PubMed
description The majority of people living with dementia reside in the community and are often reliant on the support of informal carers to do so. Family carers face many challenges in supporting the person with dementia to remain at home, and short‐term respite care is a valued service that offers a temporary break from the role. Respite cottages provide short‐term care in a residential home‐like setting with a limited number of clients and is a more flexible approach to accessing the service. Disproportionate use of cottage respite in Australia suggests this model is preferred over traditional respite within residential aged care facility (RACF) settings, yet limited research exists to compare these models. This study sought to understand the perceptions of carers who had used cottage respite in comparison to other models, and explore the contribution of cottage respite for supporting carers to continue in their role and maintain their care recipient (CR) living at home. Semi‐structured interviews were conducted with 126 family carers who had used one of two New South Wales‐based respite cottages within a 2‐year period; 67 of whom had also used RACF respite. Thematic analysis revealed four main themes around the benefits of cottage respite: (a) an effective essential service, (b) flexibility, (c) familiarity and (d) appropriateness, especially for early stage or younger onset dementia. Carers indicated that the more homely, familiar and intimate cottage model of respite care was preferential to that of the larger, institutional‐style RACF respite setting. Carers credited the cottage model of respite service with delaying their need for permanent residential placement by over 12 months. The cottage respite model provides an important avenue to supporting the individual needs of dementia dyads, with potential to delay permanent placement, and should be offered more broadly to provide people with more choice about their care.
format Online
Article
Text
id pubmed-7187172
institution National Center for Biotechnology Information
language English
publishDate 2019
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-71871722020-04-28 Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities Harkin, Damian J. O'Connor, Claire M. C. Birch, Mary‐Rose Poulos, Christopher J. Health Soc Care Community Original Articles The majority of people living with dementia reside in the community and are often reliant on the support of informal carers to do so. Family carers face many challenges in supporting the person with dementia to remain at home, and short‐term respite care is a valued service that offers a temporary break from the role. Respite cottages provide short‐term care in a residential home‐like setting with a limited number of clients and is a more flexible approach to accessing the service. Disproportionate use of cottage respite in Australia suggests this model is preferred over traditional respite within residential aged care facility (RACF) settings, yet limited research exists to compare these models. This study sought to understand the perceptions of carers who had used cottage respite in comparison to other models, and explore the contribution of cottage respite for supporting carers to continue in their role and maintain their care recipient (CR) living at home. Semi‐structured interviews were conducted with 126 family carers who had used one of two New South Wales‐based respite cottages within a 2‐year period; 67 of whom had also used RACF respite. Thematic analysis revealed four main themes around the benefits of cottage respite: (a) an effective essential service, (b) flexibility, (c) familiarity and (d) appropriateness, especially for early stage or younger onset dementia. Carers indicated that the more homely, familiar and intimate cottage model of respite care was preferential to that of the larger, institutional‐style RACF respite setting. Carers credited the cottage model of respite service with delaying their need for permanent residential placement by over 12 months. The cottage respite model provides an important avenue to supporting the individual needs of dementia dyads, with potential to delay permanent placement, and should be offered more broadly to provide people with more choice about their care. John Wiley and Sons Inc. 2019-12-20 2020-05 /pmc/articles/PMC7187172/ /pubmed/31863540 http://dx.doi.org/10.1111/hsc.12916 Text en © 2019 The Authors. Health and Social Care in the Community published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Original Articles
Harkin, Damian J.
O'Connor, Claire M. C.
Birch, Mary‐Rose
Poulos, Christopher J.
Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities
title Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities
title_full Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities
title_fullStr Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities
title_full_unstemmed Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities
title_short Perspectives of Australian family carers of people with dementia on the 'cottage' model of respite: Compared to traditional models of residential respite provided in aged care facilities
title_sort perspectives of australian family carers of people with dementia on the 'cottage' model of respite: compared to traditional models of residential respite provided in aged care facilities
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7187172/
https://www.ncbi.nlm.nih.gov/pubmed/31863540
http://dx.doi.org/10.1111/hsc.12916
work_keys_str_mv AT harkindamianj perspectivesofaustralianfamilycarersofpeoplewithdementiaonthecottagemodelofrespitecomparedtotraditionalmodelsofresidentialrespiteprovidedinagedcarefacilities
AT oconnorclairemc perspectivesofaustralianfamilycarersofpeoplewithdementiaonthecottagemodelofrespitecomparedtotraditionalmodelsofresidentialrespiteprovidedinagedcarefacilities
AT birchmaryrose perspectivesofaustralianfamilycarersofpeoplewithdementiaonthecottagemodelofrespitecomparedtotraditionalmodelsofresidentialrespiteprovidedinagedcarefacilities
AT pouloschristopherj perspectivesofaustralianfamilycarersofpeoplewithdementiaonthecottagemodelofrespitecomparedtotraditionalmodelsofresidentialrespiteprovidedinagedcarefacilities