Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience

The direct and indirect effects of Coronavirus Disease-19 (COVID-19) pandemic, on Italian patients with lysosomal storage disorders receiving therapy, were analyzed by a phone questionnaire. No proved COVID-19 emerged among 102 interviewed. No problems were reported by patients receiving oral treatm...

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Autores principales: Sechi, Annalisa, Macor, Daniela, Valent, Serena, Da Riol, Rosalia Maria, Zanatta, Manuela, Spinelli, Alessandro, Bianchi, Katja, Bertossi, Nadia, Dardis, Andrea, Valent, Francesca, Scarpa, Maurizio
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier Inc. 2020
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7189198/
https://www.ncbi.nlm.nih.gov/pubmed/32386848
http://dx.doi.org/10.1016/j.ymgme.2020.04.002
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author Sechi, Annalisa
Macor, Daniela
Valent, Serena
Da Riol, Rosalia Maria
Zanatta, Manuela
Spinelli, Alessandro
Bianchi, Katja
Bertossi, Nadia
Dardis, Andrea
Valent, Francesca
Scarpa, Maurizio
author_facet Sechi, Annalisa
Macor, Daniela
Valent, Serena
Da Riol, Rosalia Maria
Zanatta, Manuela
Spinelli, Alessandro
Bianchi, Katja
Bertossi, Nadia
Dardis, Andrea
Valent, Francesca
Scarpa, Maurizio
author_sort Sechi, Annalisa
collection PubMed
description The direct and indirect effects of Coronavirus Disease-19 (COVID-19) pandemic, on Italian patients with lysosomal storage disorders receiving therapy, were analyzed by a phone questionnaire. No proved COVID-19 emerged among 102 interviewed. No problems were reported by patients receiving oral treatments. Forty-nine% of patients receiving enzyme replacement therapy in hospitals experienced disruptions, versus 6% of those home-treated. The main reasons of missed infusions were fear of infection (62.9%) and re-organization of the infusion centers (37%).
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spelling pubmed-71891982020-04-29 Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience Sechi, Annalisa Macor, Daniela Valent, Serena Da Riol, Rosalia Maria Zanatta, Manuela Spinelli, Alessandro Bianchi, Katja Bertossi, Nadia Dardis, Andrea Valent, Francesca Scarpa, Maurizio Mol Genet Metab Article The direct and indirect effects of Coronavirus Disease-19 (COVID-19) pandemic, on Italian patients with lysosomal storage disorders receiving therapy, were analyzed by a phone questionnaire. No proved COVID-19 emerged among 102 interviewed. No problems were reported by patients receiving oral treatments. Forty-nine% of patients receiving enzyme replacement therapy in hospitals experienced disruptions, versus 6% of those home-treated. The main reasons of missed infusions were fear of infection (62.9%) and re-organization of the infusion centers (37%). Elsevier Inc. 2020-07 2020-04-29 /pmc/articles/PMC7189198/ /pubmed/32386848 http://dx.doi.org/10.1016/j.ymgme.2020.04.002 Text en © 2020 Elsevier Inc. All rights reserved. Since January 2020 Elsevier has created a COVID-19 resource centre with free information in English and Mandarin on the novel coronavirus COVID-19. The COVID-19 resource centre is hosted on Elsevier Connect, the company's public news and information website. Elsevier hereby grants permission to make all its COVID-19-related research that is available on the COVID-19 resource centre - including this research content - immediately available in PubMed Central and other publicly funded repositories, such as the WHO COVID database with rights for unrestricted research re-use and analyses in any form or by any means with acknowledgement of the original source. These permissions are granted for free by Elsevier for as long as the COVID-19 resource centre remains active.
spellingShingle Article
Sechi, Annalisa
Macor, Daniela
Valent, Serena
Da Riol, Rosalia Maria
Zanatta, Manuela
Spinelli, Alessandro
Bianchi, Katja
Bertossi, Nadia
Dardis, Andrea
Valent, Francesca
Scarpa, Maurizio
Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience
title Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience
title_full Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience
title_fullStr Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience
title_full_unstemmed Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience
title_short Impact of COVID-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first Italian experience
title_sort impact of covid-19 related healthcare crisis on treatments for patients with lysosomal storage disorders, the first italian experience
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7189198/
https://www.ncbi.nlm.nih.gov/pubmed/32386848
http://dx.doi.org/10.1016/j.ymgme.2020.04.002
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