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In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children
Engaging marginalised children, such as disabled children, in Participatory Design (PD) entails particular challenges. The processes can effect social changes by decidedly attending to their lived experience as expertise. However, involving marginalised children in research also requires maintaining...
Autores principales: | , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Taylor & Francis
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7194238/ https://www.ncbi.nlm.nih.gov/pubmed/32406393 http://dx.doi.org/10.1080/15710882.2020.1722174 |
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author | Spiel, Katta Brulé, Emeline Frauenberger, Christopher Bailley, Gilles Fitzpatrick, Geraldine |
author_facet | Spiel, Katta Brulé, Emeline Frauenberger, Christopher Bailley, Gilles Fitzpatrick, Geraldine |
author_sort | Spiel, Katta |
collection | PubMed |
description | Engaging marginalised children, such as disabled children, in Participatory Design (PD) entails particular challenges. The processes can effect social changes by decidedly attending to their lived experience as expertise. However, involving marginalised children in research also requires maintaining a delicate balance between ensuring their right to participation as well as their protection from harm. The resulting tensions are politically charged, affected by myriads of power differences and create moral dilemmas. We present seven case studies, drawing from two participatory design research projects. They illustrate the in-situ judgements taken to address specific dilemmas and provide nuanced insights into the trade-offs required by child-led participatory design processes. Subsequently, we identify three challenges: positioning our work to the children’s carers’ values, protecting ourselves, and enabling the (relative) risk-taking associated with participation for children. We call for this micro-ethical approach to be used when reporting research ethics in practice, and as a guidance for the training of researchers and practitioners. |
format | Online Article Text |
id | pubmed-7194238 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | Taylor & Francis |
record_format | MEDLINE/PubMed |
spelling | pubmed-71942382020-05-11 In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children Spiel, Katta Brulé, Emeline Frauenberger, Christopher Bailley, Gilles Fitzpatrick, Geraldine CoDesign Articles Engaging marginalised children, such as disabled children, in Participatory Design (PD) entails particular challenges. The processes can effect social changes by decidedly attending to their lived experience as expertise. However, involving marginalised children in research also requires maintaining a delicate balance between ensuring their right to participation as well as their protection from harm. The resulting tensions are politically charged, affected by myriads of power differences and create moral dilemmas. We present seven case studies, drawing from two participatory design research projects. They illustrate the in-situ judgements taken to address specific dilemmas and provide nuanced insights into the trade-offs required by child-led participatory design processes. Subsequently, we identify three challenges: positioning our work to the children’s carers’ values, protecting ourselves, and enabling the (relative) risk-taking associated with participation for children. We call for this micro-ethical approach to be used when reporting research ethics in practice, and as a guidance for the training of researchers and practitioners. Taylor & Francis 2020-02-13 /pmc/articles/PMC7194238/ /pubmed/32406393 http://dx.doi.org/10.1080/15710882.2020.1722174 Text en © 2020 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. https://creativecommons.org/licenses/by/4.0/This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/ (https://creativecommons.org/licenses/by/4.0/) ), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
spellingShingle | Articles Spiel, Katta Brulé, Emeline Frauenberger, Christopher Bailley, Gilles Fitzpatrick, Geraldine In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children |
title | In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children |
title_full | In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children |
title_fullStr | In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children |
title_full_unstemmed | In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children |
title_short | In the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children |
title_sort | in the details: the micro-ethics of negotiations and in-situ judgements in participatory design with marginalised children |
topic | Articles |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7194238/ https://www.ncbi.nlm.nih.gov/pubmed/32406393 http://dx.doi.org/10.1080/15710882.2020.1722174 |
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