The Cystic Fibrosis Impact Questionnaire: qualitative development and cognitive evaluation of a new patient-reported outcome instrument to assess the life impacts of cystic fibrosis

BACKGROUND: Patients with cystic fibrosis (CF) experience significant disease burden, including progressive pulmonary decline and reduced survival. This multicenter qualitative study was conducted to develop a new patient-reported outcome (PRO) measure to assess the impact of CF on patients’ quality...

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Detalles Bibliográficos
Autores principales: McCarrier, Kelly P., Hassan, Mariam, Hodgkins, Paul, Suthoff, Ellison, McGarry, Lisa J., Martin, Mona L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer International Publishing 2020
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7221045/
https://www.ncbi.nlm.nih.gov/pubmed/32405878
http://dx.doi.org/10.1186/s41687-020-00199-5

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