The Consent Form in the Chinese CRISPR Study: In Search of Ethical Gene Editing

This editorial provides an ethical analysis of the consent materials and other documents relating to the recent creation and birth of twin girls who had their genes edited using CRISPR-cas9 in a controversial Chinese research study. It also examines the “draft ethical principles” published by the le...

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Detalles Bibliográficos
Autor principal: Shaw, David
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Singapore 2020
Materias:
Guest Editorial
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7223878/
https://www.ncbi.nlm.nih.gov/pubmed/31900853
http://dx.doi.org/10.1007/s11673-019-09953-x
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author Shaw, David
author_facet Shaw, David
author_sort Shaw, David
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description This editorial provides an ethical analysis of the consent materials and other documents relating to the recent creation and birth of twin girls who had their genes edited using CRISPR-cas9 in a controversial Chinese research study. It also examines the “draft ethical principles” published by the leader of the research study. The results of the analysis further intensify serious ethical concerns about the conduct of this study. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s11673-019-09953-x) contains supplementary material, which is available to authorized users.
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spelling pubmed-72238782020-05-15 The Consent Form in the Chinese CRISPR Study: In Search of Ethical Gene Editing Shaw, David J Bioeth Inq Guest Editorial This editorial provides an ethical analysis of the consent materials and other documents relating to the recent creation and birth of twin girls who had their genes edited using CRISPR-cas9 in a controversial Chinese research study. It also examines the “draft ethical principles” published by the leader of the research study. The results of the analysis further intensify serious ethical concerns about the conduct of this study. ELECTRONIC SUPPLEMENTARY MATERIAL: The online version of this article (10.1007/s11673-019-09953-x) contains supplementary material, which is available to authorized users. Springer Singapore 2020-01-03 2020 /pmc/articles/PMC7223878/ /pubmed/31900853 http://dx.doi.org/10.1007/s11673-019-09953-x Text en © Journal of Bioethical Inquiry Pty Ltd. 2019 This article is made available via the PMC Open Access Subset for unrestricted research re-use and secondary analysis in any form or by any means with acknowledgement of the original source. These permissions are granted for the duration of the World Health Organization (WHO) declaration of COVID-19 as a global pandemic.
spellingShingle Guest Editorial
Shaw, David
The Consent Form in the Chinese CRISPR Study: In Search of Ethical Gene Editing
title The Consent Form in the Chinese CRISPR Study: In Search of Ethical Gene Editing
title_full The Consent Form in the Chinese CRISPR Study: In Search of Ethical Gene Editing
title_fullStr The Consent Form in the Chinese CRISPR Study: In Search of Ethical Gene Editing
title_full_unstemmed The Consent Form in the Chinese CRISPR Study: In Search of Ethical Gene Editing
title_short The Consent Form in the Chinese CRISPR Study: In Search of Ethical Gene Editing
title_sort consent form in the chinese crispr study: in search of ethical gene editing
topic Guest Editorial
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7223878/
https://www.ncbi.nlm.nih.gov/pubmed/31900853
http://dx.doi.org/10.1007/s11673-019-09953-x
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