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How Can We Not Waste Legacy Genomic Research Data?

Enabling genomic and biomedical data to be shared for secondary research purposes is not always straightforward for existing “legacy” data sets. Researchers may not know whether their data meet ethical and regulatory requirements for sharing. As a result, these data, collected using public funds and...

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Detalles Bibliográficos
Autores principales: Wallace, Susan E., Kirby, Emily, Knoppers, Bartha Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7225345/
https://www.ncbi.nlm.nih.gov/pubmed/32457803
http://dx.doi.org/10.3389/fgene.2020.00446
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author Wallace, Susan E.
Kirby, Emily
Knoppers, Bartha Maria
author_facet Wallace, Susan E.
Kirby, Emily
Knoppers, Bartha Maria
author_sort Wallace, Susan E.
collection PubMed
description Enabling genomic and biomedical data to be shared for secondary research purposes is not always straightforward for existing “legacy” data sets. Researchers may not know whether their data meet ethical and regulatory requirements for sharing. As a result, these data, collected using public funds and the good will and efforts of the donors and investigators, may not be used beyond their original purpose. Single-use plastics are now being banned in many countries; single-use research should be avoided if possible. This paper describes a filter developed through the driver projects of the Global Alliance for Genomics and Health that can be used by researchers to help them determine the extent of sharing possible for their legacy data and actions to be taken to enable further sharing.
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spelling pubmed-72253452020-05-25 How Can We Not Waste Legacy Genomic Research Data? Wallace, Susan E. Kirby, Emily Knoppers, Bartha Maria Front Genet Genetics Enabling genomic and biomedical data to be shared for secondary research purposes is not always straightforward for existing “legacy” data sets. Researchers may not know whether their data meet ethical and regulatory requirements for sharing. As a result, these data, collected using public funds and the good will and efforts of the donors and investigators, may not be used beyond their original purpose. Single-use plastics are now being banned in many countries; single-use research should be avoided if possible. This paper describes a filter developed through the driver projects of the Global Alliance for Genomics and Health that can be used by researchers to help them determine the extent of sharing possible for their legacy data and actions to be taken to enable further sharing. Frontiers Media S.A. 2020-05-08 /pmc/articles/PMC7225345/ /pubmed/32457803 http://dx.doi.org/10.3389/fgene.2020.00446 Text en Copyright © 2020 Wallace, Kirby and Knoppers. http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Genetics
Wallace, Susan E.
Kirby, Emily
Knoppers, Bartha Maria
How Can We Not Waste Legacy Genomic Research Data?
title How Can We Not Waste Legacy Genomic Research Data?
title_full How Can We Not Waste Legacy Genomic Research Data?
title_fullStr How Can We Not Waste Legacy Genomic Research Data?
title_full_unstemmed How Can We Not Waste Legacy Genomic Research Data?
title_short How Can We Not Waste Legacy Genomic Research Data?
title_sort how can we not waste legacy genomic research data?
topic Genetics
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7225345/
https://www.ncbi.nlm.nih.gov/pubmed/32457803
http://dx.doi.org/10.3389/fgene.2020.00446
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