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How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces

Safeguarding is rapidly rising up the international development agenda, yet literature on safeguarding in related research is limited. This paper shares processes and practice relating to safeguarding within an international research consortium (the ARISE hub, known as ARISE). ARISE aims to enhance...

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Autores principales: Aktar, Bachera, Alam, Wafa, Ali, Samiha, Awal, Abdul, Bayoh, Margaret, Chumo, Ivy, Contay, Yirah, Conteh, Abu, Dean, Laura, Dobson, Skye, Edstrom, Jerker, Elsey, Helen, Farnaz, Nadia, Garimella, Surekha, Gray, Linsay, Gupte, Jaideep, Hawkins, Kate, Hollihead, Beth, Josyula, Kunhi Lakshmi, Kabaria, Caroline, Karuga, Robinson, Kimani, Joseph, Leyland, Alastair H, te Lintelo, Dolf, Mansaray, Bintu, MacCarthy, Joseph, MacGregor, Hayley, Mberu, Blessing, Muturi, Nelly, Okoth, Linet, Otiso, Lilian, Ozano, Kim, Parray, Ateeb, Phillips-Howard, Penny, Rao, Vinodkumar, Rashid, Sabina, Raven, Joanna, Refell, Francis, Saidu, Samuel, Sobhan, Shafinaz, Saligram, Prasanna Subramanya, Sesay, Samira, Theobald, Sally, Tolhurst, Rachel, Tubb, Phil, Waldman, Linda, Wariutu, Jane, Whittaker, Lana, Wurie, Haja
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7228499/
https://www.ncbi.nlm.nih.gov/pubmed/32409330
http://dx.doi.org/10.1136/bmjgh-2019-002253
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author Aktar, Bachera
Alam, Wafa
Ali, Samiha
Awal, Abdul
Bayoh, Margaret
Chumo, Ivy
Contay, Yirah
Conteh, Abu
Dean, Laura
Dobson, Skye
Edstrom, Jerker
Elsey, Helen
Farnaz, Nadia
Garimella, Surekha
Gray, Linsay
Gupte, Jaideep
Hawkins, Kate
Hollihead, Beth
Josyula, Kunhi Lakshmi
Kabaria, Caroline
Karuga, Robinson
Kimani, Joseph
Leyland, Alastair H
te Lintelo, Dolf
Mansaray, Bintu
MacCarthy, Joseph
MacGregor, Hayley
Mberu, Blessing
Muturi, Nelly
Okoth, Linet
Otiso, Lilian
Ozano, Kim
Parray, Ateeb
Phillips-Howard, Penny
Rao, Vinodkumar
Rashid, Sabina
Raven, Joanna
Refell, Francis
Saidu, Samuel
Sobhan, Shafinaz
Saligram, Prasanna Subramanya
Sesay, Samira
Theobald, Sally
Tolhurst, Rachel
Tubb, Phil
Waldman, Linda
Wariutu, Jane
Whittaker, Lana
Wurie, Haja
author_facet Aktar, Bachera
Alam, Wafa
Ali, Samiha
Awal, Abdul
Bayoh, Margaret
Chumo, Ivy
Contay, Yirah
Conteh, Abu
Dean, Laura
Dobson, Skye
Edstrom, Jerker
Elsey, Helen
Farnaz, Nadia
Garimella, Surekha
Gray, Linsay
Gupte, Jaideep
Hawkins, Kate
Hollihead, Beth
Josyula, Kunhi Lakshmi
Kabaria, Caroline
Karuga, Robinson
Kimani, Joseph
Leyland, Alastair H
te Lintelo, Dolf
Mansaray, Bintu
MacCarthy, Joseph
MacGregor, Hayley
Mberu, Blessing
Muturi, Nelly
Okoth, Linet
Otiso, Lilian
Ozano, Kim
Parray, Ateeb
Phillips-Howard, Penny
Rao, Vinodkumar
Rashid, Sabina
Raven, Joanna
Refell, Francis
Saidu, Samuel
Sobhan, Shafinaz
Saligram, Prasanna Subramanya
Sesay, Samira
Theobald, Sally
Tolhurst, Rachel
Tubb, Phil
Waldman, Linda
Wariutu, Jane
Whittaker, Lana
Wurie, Haja
author_sort Aktar, Bachera
collection PubMed
description Safeguarding is rapidly rising up the international development agenda, yet literature on safeguarding in related research is limited. This paper shares processes and practice relating to safeguarding within an international research consortium (the ARISE hub, known as ARISE). ARISE aims to enhance accountability and improve the health and well-being of marginalised people living and working in informal urban spaces in low-income and middle-income countries (Bangladesh, India, Kenya and Sierra Leone). Our manuscript is divided into three key sections. We start by discussing the importance of safeguarding in global health research and consider how thinking about vulnerability as a relational concept (shaped by unequal power relations and structural violence) can help locate fluid and context specific safeguarding risks within broader social systems. We then discuss the different steps undertaken in ARISE to develop a shared approach to safeguarding: sharing institutional guidelines and practice; facilitating a participatory process to agree a working definition of safeguarding and joint understandings of vulnerabilities, risks and mitigation strategies and share experiences; developing action plans for safeguarding. This is followed by reflection on our key learnings including how safeguarding, ethics and health and safety concerns overlap; the challenges of referral and support for safeguarding concerns within frequently underserved informal urban spaces; and the importance of reflective practice and critical thinking about power, judgement and positionality and the ownership of the global narrative surrounding safeguarding. We finish by situating our learning within debates on decolonising science and argue for the importance of an iterative, ongoing learning journey that is critical, reflective and inclusive of vulnerable people.
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spelling pubmed-72284992020-05-18 How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces Aktar, Bachera Alam, Wafa Ali, Samiha Awal, Abdul Bayoh, Margaret Chumo, Ivy Contay, Yirah Conteh, Abu Dean, Laura Dobson, Skye Edstrom, Jerker Elsey, Helen Farnaz, Nadia Garimella, Surekha Gray, Linsay Gupte, Jaideep Hawkins, Kate Hollihead, Beth Josyula, Kunhi Lakshmi Kabaria, Caroline Karuga, Robinson Kimani, Joseph Leyland, Alastair H te Lintelo, Dolf Mansaray, Bintu MacCarthy, Joseph MacGregor, Hayley Mberu, Blessing Muturi, Nelly Okoth, Linet Otiso, Lilian Ozano, Kim Parray, Ateeb Phillips-Howard, Penny Rao, Vinodkumar Rashid, Sabina Raven, Joanna Refell, Francis Saidu, Samuel Sobhan, Shafinaz Saligram, Prasanna Subramanya Sesay, Samira Theobald, Sally Tolhurst, Rachel Tubb, Phil Waldman, Linda Wariutu, Jane Whittaker, Lana Wurie, Haja BMJ Glob Health Practice Safeguarding is rapidly rising up the international development agenda, yet literature on safeguarding in related research is limited. This paper shares processes and practice relating to safeguarding within an international research consortium (the ARISE hub, known as ARISE). ARISE aims to enhance accountability and improve the health and well-being of marginalised people living and working in informal urban spaces in low-income and middle-income countries (Bangladesh, India, Kenya and Sierra Leone). Our manuscript is divided into three key sections. We start by discussing the importance of safeguarding in global health research and consider how thinking about vulnerability as a relational concept (shaped by unequal power relations and structural violence) can help locate fluid and context specific safeguarding risks within broader social systems. We then discuss the different steps undertaken in ARISE to develop a shared approach to safeguarding: sharing institutional guidelines and practice; facilitating a participatory process to agree a working definition of safeguarding and joint understandings of vulnerabilities, risks and mitigation strategies and share experiences; developing action plans for safeguarding. This is followed by reflection on our key learnings including how safeguarding, ethics and health and safety concerns overlap; the challenges of referral and support for safeguarding concerns within frequently underserved informal urban spaces; and the importance of reflective practice and critical thinking about power, judgement and positionality and the ownership of the global narrative surrounding safeguarding. We finish by situating our learning within debates on decolonising science and argue for the importance of an iterative, ongoing learning journey that is critical, reflective and inclusive of vulnerable people. BMJ Publishing Group 2020-05-13 /pmc/articles/PMC7228499/ /pubmed/32409330 http://dx.doi.org/10.1136/bmjgh-2019-002253 Text en © Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Practice
Aktar, Bachera
Alam, Wafa
Ali, Samiha
Awal, Abdul
Bayoh, Margaret
Chumo, Ivy
Contay, Yirah
Conteh, Abu
Dean, Laura
Dobson, Skye
Edstrom, Jerker
Elsey, Helen
Farnaz, Nadia
Garimella, Surekha
Gray, Linsay
Gupte, Jaideep
Hawkins, Kate
Hollihead, Beth
Josyula, Kunhi Lakshmi
Kabaria, Caroline
Karuga, Robinson
Kimani, Joseph
Leyland, Alastair H
te Lintelo, Dolf
Mansaray, Bintu
MacCarthy, Joseph
MacGregor, Hayley
Mberu, Blessing
Muturi, Nelly
Okoth, Linet
Otiso, Lilian
Ozano, Kim
Parray, Ateeb
Phillips-Howard, Penny
Rao, Vinodkumar
Rashid, Sabina
Raven, Joanna
Refell, Francis
Saidu, Samuel
Sobhan, Shafinaz
Saligram, Prasanna Subramanya
Sesay, Samira
Theobald, Sally
Tolhurst, Rachel
Tubb, Phil
Waldman, Linda
Wariutu, Jane
Whittaker, Lana
Wurie, Haja
How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces
title How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces
title_full How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces
title_fullStr How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces
title_full_unstemmed How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces
title_short How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces
title_sort how to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces
topic Practice
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7228499/
https://www.ncbi.nlm.nih.gov/pubmed/32409330
http://dx.doi.org/10.1136/bmjgh-2019-002253
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