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S33. RELATIVES IN RESOURCE GROUP ASSERTIVE COMMUNITY TREATMENT (RACT): RELATIVES’ EXPERIENCES

BACKGROUND: Relatives often provide extensive support to their next of kin suffering from psychotic disorders. However, they often experience lack of support from psychiatric services. While cooperation with relatives is a central component in Resource Group Assertive Community Treatment (RACT), lit...

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Autores principales: Sjöström, Nils, Ewertzon, Mats, Johansson, Ola, Weimand, Bente, Johansson, Anita, Mellgren, Zophia, Ek-Persson, Jane, Waern, Margda
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7234233/
http://dx.doi.org/10.1093/schbul/sbaa031.099
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author Sjöström, Nils
Ewertzon, Mats
Johansson, Ola
Weimand, Bente
Johansson, Anita
Mellgren, Zophia
Ek-Persson, Jane
Waern, Margda
author_facet Sjöström, Nils
Ewertzon, Mats
Johansson, Ola
Weimand, Bente
Johansson, Anita
Mellgren, Zophia
Ek-Persson, Jane
Waern, Margda
author_sort Sjöström, Nils
collection PubMed
description BACKGROUND: Relatives often provide extensive support to their next of kin suffering from psychotic disorders. However, they often experience lack of support from psychiatric services. While cooperation with relatives is a central component in Resource Group Assertive Community Treatment (RACT), little is known about relatives’ experiences of RACT. The aim was to investigate relatives’ experiences of encountering psychiatric care with and without RACT, in relation to quality of life, family burden and family stigma. METHODS: A total of 139 relatives of individuals suffering from psychotic disorders in the Region Västra Götaland, Sweden filled out the self-report instruments Family Involvement and Alienation Questionnaire – Revised (FIAQ-R), the Burden Inventory for Relatives of Persons with Psychotic Disturbances, the Inventory of Stigmatizing Experiences (family version), and RAND-36. RESULTS: Participants included 79 relatives with experience of RACT and 60 without. In the total group 70% were women. Mean age was 63 years (SD 12.4). A majority came from Sweden (91%), had >12 years of education (61%) and did not live together with the patient (76%). A majority were parents, (70%). These demographic characteristics did not differ in those with and without RACT. We found that relatives who participated RACT experienced a more positive approach from the healthcare professionals compared to those without RACT (p=.001). Furthermore, relatives who participated in RACT felt to a lower extent that they were alienated from the provision of care than did other relatives (p=.005). Relatives who did not participate in resource group were significantly more afraid that their ill next of kin would hurt someone. The association remained after adjustment for experience of approach and feeling of alienation. No other differences in family burden variables were found. Findings regarding mental Quality of Life scores and experiences of family stigmatization were similar in those both with and without RACT. DISCUSSION: The results suggest that participating in RACT may contribute to a higher level of satisfaction for relatives in their encounter with healthcare professionals.
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spelling pubmed-72342332020-05-23 S33. RELATIVES IN RESOURCE GROUP ASSERTIVE COMMUNITY TREATMENT (RACT): RELATIVES’ EXPERIENCES Sjöström, Nils Ewertzon, Mats Johansson, Ola Weimand, Bente Johansson, Anita Mellgren, Zophia Ek-Persson, Jane Waern, Margda Schizophr Bull Poster Session I BACKGROUND: Relatives often provide extensive support to their next of kin suffering from psychotic disorders. However, they often experience lack of support from psychiatric services. While cooperation with relatives is a central component in Resource Group Assertive Community Treatment (RACT), little is known about relatives’ experiences of RACT. The aim was to investigate relatives’ experiences of encountering psychiatric care with and without RACT, in relation to quality of life, family burden and family stigma. METHODS: A total of 139 relatives of individuals suffering from psychotic disorders in the Region Västra Götaland, Sweden filled out the self-report instruments Family Involvement and Alienation Questionnaire – Revised (FIAQ-R), the Burden Inventory for Relatives of Persons with Psychotic Disturbances, the Inventory of Stigmatizing Experiences (family version), and RAND-36. RESULTS: Participants included 79 relatives with experience of RACT and 60 without. In the total group 70% were women. Mean age was 63 years (SD 12.4). A majority came from Sweden (91%), had >12 years of education (61%) and did not live together with the patient (76%). A majority were parents, (70%). These demographic characteristics did not differ in those with and without RACT. We found that relatives who participated RACT experienced a more positive approach from the healthcare professionals compared to those without RACT (p=.001). Furthermore, relatives who participated in RACT felt to a lower extent that they were alienated from the provision of care than did other relatives (p=.005). Relatives who did not participate in resource group were significantly more afraid that their ill next of kin would hurt someone. The association remained after adjustment for experience of approach and feeling of alienation. No other differences in family burden variables were found. Findings regarding mental Quality of Life scores and experiences of family stigmatization were similar in those both with and without RACT. DISCUSSION: The results suggest that participating in RACT may contribute to a higher level of satisfaction for relatives in their encounter with healthcare professionals. Oxford University Press 2020-05 2020-05-18 /pmc/articles/PMC7234233/ http://dx.doi.org/10.1093/schbul/sbaa031.099 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of the Maryland Psychiatric Research Center. http://creativecommons.org/licenses/by-nc/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Poster Session I
Sjöström, Nils
Ewertzon, Mats
Johansson, Ola
Weimand, Bente
Johansson, Anita
Mellgren, Zophia
Ek-Persson, Jane
Waern, Margda
S33. RELATIVES IN RESOURCE GROUP ASSERTIVE COMMUNITY TREATMENT (RACT): RELATIVES’ EXPERIENCES
title S33. RELATIVES IN RESOURCE GROUP ASSERTIVE COMMUNITY TREATMENT (RACT): RELATIVES’ EXPERIENCES
title_full S33. RELATIVES IN RESOURCE GROUP ASSERTIVE COMMUNITY TREATMENT (RACT): RELATIVES’ EXPERIENCES
title_fullStr S33. RELATIVES IN RESOURCE GROUP ASSERTIVE COMMUNITY TREATMENT (RACT): RELATIVES’ EXPERIENCES
title_full_unstemmed S33. RELATIVES IN RESOURCE GROUP ASSERTIVE COMMUNITY TREATMENT (RACT): RELATIVES’ EXPERIENCES
title_short S33. RELATIVES IN RESOURCE GROUP ASSERTIVE COMMUNITY TREATMENT (RACT): RELATIVES’ EXPERIENCES
title_sort s33. relatives in resource group assertive community treatment (ract): relatives’ experiences
topic Poster Session I
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7234233/
http://dx.doi.org/10.1093/schbul/sbaa031.099
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