Cargando…

T186. IMPACT OF A STRUCTURED VALIDATED FAMILY PSYCHOEDUCATIONAL PROGRAM (PROFAMILLE) ON MENTAL HEALTH CARE OF PEOPLE WITH SCHIZOPHRENIA SPECTRUM DISORDERS: PRELIMINARY RESULTS

BACKGROUND: Psychoeducational programs for caregivers are essential to support the rehabilitation process and recovery in patients with severe psychiatric disorders. PROFAMILLE is a French psychoeducational program first developed in 1987 in Quebec for caregivers of people suffering from schizophren...

Descripción completa

Detalles Bibliográficos
Autores principales: Bralet, Marie-Cécile, Willard, Dominique, Hodé, Yann, Kremers, Laura
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7234633/
http://dx.doi.org/10.1093/schbul/sbaa029.746
_version_ 1783535809436057600
author Bralet, Marie-Cécile
Willard, Dominique
Hodé, Yann
Kremers, Laura
author_facet Bralet, Marie-Cécile
Willard, Dominique
Hodé, Yann
Kremers, Laura
author_sort Bralet, Marie-Cécile
collection PubMed
description BACKGROUND: Psychoeducational programs for caregivers are essential to support the rehabilitation process and recovery in patients with severe psychiatric disorders. PROFAMILLE is a French psychoeducational program first developed in 1987 in Quebec for caregivers of people suffering from schizophrenia spectrum disorders. Its efficacy has already been proven: increased mental well-being of caregivers, 50 % less hospitalisations and improvement of the rehabilitation process of their ill relatives. Nowadays, this program exists in 6 different countries. While psychosocial rehabilitation programs should be proposed to all patients with schizophrenia spectrum disorders, the access to them seems to be limited. Moreover, the adherence rate to mental health care is low, partially because of lack of motivation and insight. We postulate that proposing a psychoeducational intervention to caregivers with a validated psychoeducational program such as PROFAMILLE, could improve commitment of patients to their mental health care and also to more specific psychosocial rehabilitation interventions (psychoeducation, cognitive remediation, social skills, cognitive behavioural therapy, social and employment supports). This present study aims to analyse the effect of PROFAMILLE program on the quality of mental healthcare given to the ill relatives of participants. METHODS: We conducted in September 2019 a retrospective observational study in a Cognitive Remediation and Psychosocial Rehabilitation Department, CRISALID (area Hauts de France, France) which proposes PROFAMILLE program since 2010. PROFAMILLE is a groupal intervention program structured in two modules including first 14 sessions then 4 sessions with animators and 4 sessions without animators. There are home exercises between the sessions. All the caregivers are assessed with several socio-demographic, clinical and psychological tools during all the program. We used patient’s on-line medical files and caregivers phone calls to collect following data: first contact with the mental health care department, next contacts with mental health care departments, improvement of the quality of mental health care, participation to a cognitive remediation and psychosocial rehabilitation program. RESULTS: 94 caregivers who participated to the whole program were included (PROFAMILLE program between 2012 and 2019). We obtained data about ill relatives of 81 caregivers (86 %). Relatives report the following data: 14 % (11) patients were able to benefit for the first time health mental care after their caregiver followed the program. 57 % (25) of the already followed up patients (44) improved the quality of their health mental care. 44, 5 % (36) of the patients were participated to the integrative cognitive remediation and psychosocial rehabilitation program in CRISALID; 12, 4% (10/36) of the patients entered to this cognitive remediation and psychosocial rehabilitation program after their caregiver followed the PROFAMILLE program. DISCUSSION: These first preliminary results are interesting in several aspects of the mental health care, mostly concerning the first access to mental health care and the improvement of its quality, including the participation to cognitive and psychosocial rehabilitation programs. Thus, these results confirm the previous findings regarding PROFAMILLE Program: this program not only benefits directly to the caregivers, but also to their ill relatives by improving the quality and the access to mental health care. These results must be confirmed including more participants and a control group (without PROFAMILLE program). In conclusion, a validated psychoeducational program for caregivers represents an important stake in the rehabilitation process for people suffering from schizophrenia spectrum disorders on their way to recovery; these programs should be systematically implemented in mental health care.
format Online
Article
Text
id pubmed-7234633
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher Oxford University Press
record_format MEDLINE/PubMed
spelling pubmed-72346332020-05-23 T186. IMPACT OF A STRUCTURED VALIDATED FAMILY PSYCHOEDUCATIONAL PROGRAM (PROFAMILLE) ON MENTAL HEALTH CARE OF PEOPLE WITH SCHIZOPHRENIA SPECTRUM DISORDERS: PRELIMINARY RESULTS Bralet, Marie-Cécile Willard, Dominique Hodé, Yann Kremers, Laura Schizophr Bull Poster Session III BACKGROUND: Psychoeducational programs for caregivers are essential to support the rehabilitation process and recovery in patients with severe psychiatric disorders. PROFAMILLE is a French psychoeducational program first developed in 1987 in Quebec for caregivers of people suffering from schizophrenia spectrum disorders. Its efficacy has already been proven: increased mental well-being of caregivers, 50 % less hospitalisations and improvement of the rehabilitation process of their ill relatives. Nowadays, this program exists in 6 different countries. While psychosocial rehabilitation programs should be proposed to all patients with schizophrenia spectrum disorders, the access to them seems to be limited. Moreover, the adherence rate to mental health care is low, partially because of lack of motivation and insight. We postulate that proposing a psychoeducational intervention to caregivers with a validated psychoeducational program such as PROFAMILLE, could improve commitment of patients to their mental health care and also to more specific psychosocial rehabilitation interventions (psychoeducation, cognitive remediation, social skills, cognitive behavioural therapy, social and employment supports). This present study aims to analyse the effect of PROFAMILLE program on the quality of mental healthcare given to the ill relatives of participants. METHODS: We conducted in September 2019 a retrospective observational study in a Cognitive Remediation and Psychosocial Rehabilitation Department, CRISALID (area Hauts de France, France) which proposes PROFAMILLE program since 2010. PROFAMILLE is a groupal intervention program structured in two modules including first 14 sessions then 4 sessions with animators and 4 sessions without animators. There are home exercises between the sessions. All the caregivers are assessed with several socio-demographic, clinical and psychological tools during all the program. We used patient’s on-line medical files and caregivers phone calls to collect following data: first contact with the mental health care department, next contacts with mental health care departments, improvement of the quality of mental health care, participation to a cognitive remediation and psychosocial rehabilitation program. RESULTS: 94 caregivers who participated to the whole program were included (PROFAMILLE program between 2012 and 2019). We obtained data about ill relatives of 81 caregivers (86 %). Relatives report the following data: 14 % (11) patients were able to benefit for the first time health mental care after their caregiver followed the program. 57 % (25) of the already followed up patients (44) improved the quality of their health mental care. 44, 5 % (36) of the patients were participated to the integrative cognitive remediation and psychosocial rehabilitation program in CRISALID; 12, 4% (10/36) of the patients entered to this cognitive remediation and psychosocial rehabilitation program after their caregiver followed the PROFAMILLE program. DISCUSSION: These first preliminary results are interesting in several aspects of the mental health care, mostly concerning the first access to mental health care and the improvement of its quality, including the participation to cognitive and psychosocial rehabilitation programs. Thus, these results confirm the previous findings regarding PROFAMILLE Program: this program not only benefits directly to the caregivers, but also to their ill relatives by improving the quality and the access to mental health care. These results must be confirmed including more participants and a control group (without PROFAMILLE program). In conclusion, a validated psychoeducational program for caregivers represents an important stake in the rehabilitation process for people suffering from schizophrenia spectrum disorders on their way to recovery; these programs should be systematically implemented in mental health care. Oxford University Press 2020-05 2020-05-18 /pmc/articles/PMC7234633/ http://dx.doi.org/10.1093/schbul/sbaa029.746 Text en © The Author(s) 2020. Published by Oxford University Press on behalf of the Maryland Psychiatric Research Center. http://creativecommons.org/licenses/by-nc/4.0/ This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
spellingShingle Poster Session III
Bralet, Marie-Cécile
Willard, Dominique
Hodé, Yann
Kremers, Laura
T186. IMPACT OF A STRUCTURED VALIDATED FAMILY PSYCHOEDUCATIONAL PROGRAM (PROFAMILLE) ON MENTAL HEALTH CARE OF PEOPLE WITH SCHIZOPHRENIA SPECTRUM DISORDERS: PRELIMINARY RESULTS
title T186. IMPACT OF A STRUCTURED VALIDATED FAMILY PSYCHOEDUCATIONAL PROGRAM (PROFAMILLE) ON MENTAL HEALTH CARE OF PEOPLE WITH SCHIZOPHRENIA SPECTRUM DISORDERS: PRELIMINARY RESULTS
title_full T186. IMPACT OF A STRUCTURED VALIDATED FAMILY PSYCHOEDUCATIONAL PROGRAM (PROFAMILLE) ON MENTAL HEALTH CARE OF PEOPLE WITH SCHIZOPHRENIA SPECTRUM DISORDERS: PRELIMINARY RESULTS
title_fullStr T186. IMPACT OF A STRUCTURED VALIDATED FAMILY PSYCHOEDUCATIONAL PROGRAM (PROFAMILLE) ON MENTAL HEALTH CARE OF PEOPLE WITH SCHIZOPHRENIA SPECTRUM DISORDERS: PRELIMINARY RESULTS
title_full_unstemmed T186. IMPACT OF A STRUCTURED VALIDATED FAMILY PSYCHOEDUCATIONAL PROGRAM (PROFAMILLE) ON MENTAL HEALTH CARE OF PEOPLE WITH SCHIZOPHRENIA SPECTRUM DISORDERS: PRELIMINARY RESULTS
title_short T186. IMPACT OF A STRUCTURED VALIDATED FAMILY PSYCHOEDUCATIONAL PROGRAM (PROFAMILLE) ON MENTAL HEALTH CARE OF PEOPLE WITH SCHIZOPHRENIA SPECTRUM DISORDERS: PRELIMINARY RESULTS
title_sort t186. impact of a structured validated family psychoeducational program (profamille) on mental health care of people with schizophrenia spectrum disorders: preliminary results
topic Poster Session III
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7234633/
http://dx.doi.org/10.1093/schbul/sbaa029.746
work_keys_str_mv AT braletmariececile t186impactofastructuredvalidatedfamilypsychoeducationalprogramprofamilleonmentalhealthcareofpeoplewithschizophreniaspectrumdisorderspreliminaryresults
AT t186impactofastructuredvalidatedfamilypsychoeducationalprogramprofamilleonmentalhealthcareofpeoplewithschizophreniaspectrumdisorderspreliminaryresults
AT willarddominique t186impactofastructuredvalidatedfamilypsychoeducationalprogramprofamilleonmentalhealthcareofpeoplewithschizophreniaspectrumdisorderspreliminaryresults
AT hodeyann t186impactofastructuredvalidatedfamilypsychoeducationalprogramprofamilleonmentalhealthcareofpeoplewithschizophreniaspectrumdisorderspreliminaryresults
AT kremerslaura t186impactofastructuredvalidatedfamilypsychoeducationalprogramprofamilleonmentalhealthcareofpeoplewithschizophreniaspectrumdisorderspreliminaryresults