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The Development of a Quality of Life Scale for Informal Carers for Older Adults

Background: The aim of the study was to develop a multidimensional quality of life instrument suitable for use among individuals across cultures who have an informal care role for older persons. Methods: Participants were informal carers of older adults in the United Kingdom (n = 308), United States...

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Autores principales: Maltby, John, Hogervorst, Eef, Stephan, Blossom, Sun, Xu, Tang, Pinyan, Law, Effie, Mukaetova-Ladinska, Elizabeta B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7238784/
https://www.ncbi.nlm.nih.gov/pubmed/32490040
http://dx.doi.org/10.1177/2333721420920424
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author Maltby, John
Hogervorst, Eef
Stephan, Blossom
Sun, Xu
Tang, Pinyan
Law, Effie
Mukaetova-Ladinska, Elizabeta B.
author_facet Maltby, John
Hogervorst, Eef
Stephan, Blossom
Sun, Xu
Tang, Pinyan
Law, Effie
Mukaetova-Ladinska, Elizabeta B.
author_sort Maltby, John
collection PubMed
description Background: The aim of the study was to develop a multidimensional quality of life instrument suitable for use among individuals across cultures who have an informal care role for older persons. Methods: Participants were informal carers of older adults in the United Kingdom (n = 308), United States (n = 164), and China (n = 131). We carried out exploratory and confirmatory factor analyses of 61 items derived from the eight-factor Adult Carers Quality of Life Questionnaire with newly added items to define both traditional and nontraditional informal care roles. Results: Findings suggest a 24-item quality of life scale with a six-factor structure to caring for older adults that assesses (a) exhaustion, (b) adoption of a traditional carer role, (c) personal growth, (d) management and performance, (e) level of support, and (f) financial matters. Conclusion: We present a new scale to assess the multidimensional aspects of quality of life among those caring for older adults.
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spelling pubmed-72387842020-06-01 The Development of a Quality of Life Scale for Informal Carers for Older Adults Maltby, John Hogervorst, Eef Stephan, Blossom Sun, Xu Tang, Pinyan Law, Effie Mukaetova-Ladinska, Elizabeta B. Gerontol Geriatr Med Article Background: The aim of the study was to develop a multidimensional quality of life instrument suitable for use among individuals across cultures who have an informal care role for older persons. Methods: Participants were informal carers of older adults in the United Kingdom (n = 308), United States (n = 164), and China (n = 131). We carried out exploratory and confirmatory factor analyses of 61 items derived from the eight-factor Adult Carers Quality of Life Questionnaire with newly added items to define both traditional and nontraditional informal care roles. Results: Findings suggest a 24-item quality of life scale with a six-factor structure to caring for older adults that assesses (a) exhaustion, (b) adoption of a traditional carer role, (c) personal growth, (d) management and performance, (e) level of support, and (f) financial matters. Conclusion: We present a new scale to assess the multidimensional aspects of quality of life among those caring for older adults. SAGE Publications 2020-05-14 /pmc/articles/PMC7238784/ /pubmed/32490040 http://dx.doi.org/10.1177/2333721420920424 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Article
Maltby, John
Hogervorst, Eef
Stephan, Blossom
Sun, Xu
Tang, Pinyan
Law, Effie
Mukaetova-Ladinska, Elizabeta B.
The Development of a Quality of Life Scale for Informal Carers for Older Adults
title The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_full The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_fullStr The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_full_unstemmed The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_short The Development of a Quality of Life Scale for Informal Carers for Older Adults
title_sort development of a quality of life scale for informal carers for older adults
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7238784/
https://www.ncbi.nlm.nih.gov/pubmed/32490040
http://dx.doi.org/10.1177/2333721420920424
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