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Innovative Recruitment Strategies to Increase Diversity of Participation in Parkinson’s Disease Research: The Fox Insight Cohort Experience
BACKGROUND: Clinical research in Parkinson’s disease (PD) faces practical and ethical challenges due to two interrelated problems: participant under-recruitment and lack of diversity. Fox Insight (FI) is a web-based longitudinal study collecting patient-reported outcomes and genetic data worldwide t...
Autores principales: | Dobkin, Roseanne D., Amondikar, Ninad, Kopil, Catherine, Caspell-Garcia, Chelsea, Brown, Ethan, Chahine, Lana M., Marras, Connie, Dahodwala, Nabila, Mantri, Sneha, Standaert, David G., Dean, Marissa, Shoulson, Ira, Marek, Kenneth, Katz, Andrea, Korell, Monica, Riley, Lindsey, Tanner, Caroline M. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
IOS Press
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7242847/ https://www.ncbi.nlm.nih.gov/pubmed/32250321 http://dx.doi.org/10.3233/JPD-191901 |
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