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Justice: a key consideration in health policy and systems research ethics

Health policy and systems research (HPSR) is increasingly being funded and conducted worldwide. There are currently no specific guidelines or criteria for the ethical review and conduct of HPSR. Academic debates on HPSR ethics in the scholarly literature can inform the development of guidelines. Yet...

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Autores principales: Pratt, Bridget, Wild, Verina, Barasa, Edwine, Kamuya, Dorcas, Gilson, Lucy, Hendl, Tereza, Molyneux, Sassy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BMJ Publishing Group 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7245410/
http://dx.doi.org/10.1136/bmjgh-2019-001942
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author Pratt, Bridget
Wild, Verina
Barasa, Edwine
Kamuya, Dorcas
Gilson, Lucy
Hendl, Tereza
Molyneux, Sassy
author_facet Pratt, Bridget
Wild, Verina
Barasa, Edwine
Kamuya, Dorcas
Gilson, Lucy
Hendl, Tereza
Molyneux, Sassy
author_sort Pratt, Bridget
collection PubMed
description Health policy and systems research (HPSR) is increasingly being funded and conducted worldwide. There are currently no specific guidelines or criteria for the ethical review and conduct of HPSR. Academic debates on HPSR ethics in the scholarly literature can inform the development of guidelines. Yet there is a deficiency of academic bioethics work relating to justice in HPSR. This gap is especially problematic for a field like HPSR, which can entail studies that intervene in ways affecting the social and health system delivery structures of society. In this paper, we call for interpreting the principle of justice in a more expansive way in developing and reviewing HPSR studies (relative to biomedical research). The principle requires advancing health equity and social justice at population or systems levels. Drawing on the rich justice literature from political philosophy and public health ethics, we propose a set of essential justice considerations to uphold this principle. These considerations are relevant for research funders, researchers, research ethics committees, policymakers, community organisations and others who are active in the HPSR field.
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spelling pubmed-72454102020-06-03 Justice: a key consideration in health policy and systems research ethics Pratt, Bridget Wild, Verina Barasa, Edwine Kamuya, Dorcas Gilson, Lucy Hendl, Tereza Molyneux, Sassy BMJ Glob Health Analysis Health policy and systems research (HPSR) is increasingly being funded and conducted worldwide. There are currently no specific guidelines or criteria for the ethical review and conduct of HPSR. Academic debates on HPSR ethics in the scholarly literature can inform the development of guidelines. Yet there is a deficiency of academic bioethics work relating to justice in HPSR. This gap is especially problematic for a field like HPSR, which can entail studies that intervene in ways affecting the social and health system delivery structures of society. In this paper, we call for interpreting the principle of justice in a more expansive way in developing and reviewing HPSR studies (relative to biomedical research). The principle requires advancing health equity and social justice at population or systems levels. Drawing on the rich justice literature from political philosophy and public health ethics, we propose a set of essential justice considerations to uphold this principle. These considerations are relevant for research funders, researchers, research ethics committees, policymakers, community organisations and others who are active in the HPSR field. BMJ Publishing Group 2020-04-08 /pmc/articles/PMC7245410/ http://dx.doi.org/10.1136/bmjgh-2019-001942 Text en © Author(s) (or their employer(s)) 2020. Re-use permitted under CC BY. Published by BMJ. https://creativecommons.org/licenses/by/4.0/This is an open access article distributed in accordance with the Creative Commons Attribution 4.0 Unported (CC BY 4.0) license, which permits others to copy, redistribute, remix, transform and build upon this work for any purpose, provided the original work is properly cited, a link to the licence is given, and indication of whether changes were made. See: https://creativecommons.org/licenses/by/4.0/.
spellingShingle Analysis
Pratt, Bridget
Wild, Verina
Barasa, Edwine
Kamuya, Dorcas
Gilson, Lucy
Hendl, Tereza
Molyneux, Sassy
Justice: a key consideration in health policy and systems research ethics
title Justice: a key consideration in health policy and systems research ethics
title_full Justice: a key consideration in health policy and systems research ethics
title_fullStr Justice: a key consideration in health policy and systems research ethics
title_full_unstemmed Justice: a key consideration in health policy and systems research ethics
title_short Justice: a key consideration in health policy and systems research ethics
title_sort justice: a key consideration in health policy and systems research ethics
topic Analysis
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7245410/
http://dx.doi.org/10.1136/bmjgh-2019-001942
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