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Effects of sex, race, ethnicity, and education on online aging research participation

INTRODUCTION: This study aimed to identify the relationship of sociodemographic variables with older adults participation in an online registry for recruitment and longitudinal assessment in cognitive aging. METHODS: Using Brain Health Registry (BHR) data, associations between sociodemographic varia...

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Detalles Bibliográficos
Autores principales: Ashford, Miriam T., Eichenbaum, Joseph, Williams, Tirzah, Camacho, Monica R., Fockler, Juliet, Ulbricht, Aaron, Flenniken, Derek, Truran, Diana, Mackin, R. Scott, Weiner, Michael W., Nosheny, Rachel L.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7249268/
https://www.ncbi.nlm.nih.gov/pubmed/32478165
http://dx.doi.org/10.1002/trc2.12028
Descripción
Sumario:INTRODUCTION: This study aimed to identify the relationship of sociodemographic variables with older adults participation in an online registry for recruitment and longitudinal assessment in cognitive aging. METHODS: Using Brain Health Registry (BHR) data, associations between sociodemographic variables (sex, race, ethnicity, education) and registry participation outcomes (task completion, willingness to participate in future studies, referral/enrollment in other studies) were examined in adults aged 55+ (N = 35,919) using logistic regression. All models included sex, race, ethnicity, education, age, and subjective memory concern. RESULTS: Non‐white race, being Latino, and lower educational attainment were associated with decreased task completion and enrollment in additional studies. Results for sex were mixed. DISCUSSION: The findings provide novel information about engagement in online aging‐related registries, and highlight a need to develop improved engagement strategies targeting underrepresented sociodemographic groups. Increasing registry diversity will allow researchers to refer more representative populations to Alzheimer's and related dementias prevention and treatment trials.