Cargando…
Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care
IMPORTANCE: Sickle cell disease (SCD) is the most common inherited red blood cell disorder in the United States, and previous studies have shown that individuals with SCD are affected by multiple health disparities, including stigmatization, inequities in funding, and worse health outcomes, which ma...
Autores principales: | Kanter, Julie, Gibson, Robert, Lawrence, Raymona H., Smeltzer, Matthew P., Pugh, Norma L., Glassberg, Jeffrey, Masese, Rita V., King, Allison A., Calhoun, Cecelia, Hankins, Jane S., Treadwell, Marsha |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
American Medical Association
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7260622/ https://www.ncbi.nlm.nih.gov/pubmed/32469413 http://dx.doi.org/10.1001/jamanetworkopen.2020.6016 |
Ejemplares similares
-
Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease
por: Harris, Kelly M., et al.
Publicado: (2023) -
Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium
por: Masese, Rita V., et al.
Publicado: (2021) -
Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA
por: Smeltzer, Matthew P, et al.
Publicado: (2021) -
Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease
por: Howell, Kristen E., et al.
Publicado: (2023) -
“The project did not come to us with a solution”: Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle cell disease
por: Baumann, Ana A., et al.
Publicado: (2023)