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Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations

Multiple studies show that racial and ethnic minorities with low socioeconomic status are diagnosed with Alzheimer’s disease and Alzheimer’s disease–related dementias (AD/ADRD) in more advanced disease stages, receive fewer formal services, and have worse health outcomes. For primary care providers...

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Autores principales: Sadarangani, Tina R., Salcedo, Vanessa, Chodosh, Joshua, Kwon, Simona, Trinh-Shevrin, Chau, Yi, Stella
Formato: Online Artículo Texto
Lenguaje:English
Publicado: SAGE Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7265073/
https://www.ncbi.nlm.nih.gov/pubmed/32476553
http://dx.doi.org/10.1177/2150132720921680
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author Sadarangani, Tina R.
Salcedo, Vanessa
Chodosh, Joshua
Kwon, Simona
Trinh-Shevrin, Chau
Yi, Stella
author_facet Sadarangani, Tina R.
Salcedo, Vanessa
Chodosh, Joshua
Kwon, Simona
Trinh-Shevrin, Chau
Yi, Stella
author_sort Sadarangani, Tina R.
collection PubMed
description Multiple studies show that racial and ethnic minorities with low socioeconomic status are diagnosed with Alzheimer’s disease and Alzheimer’s disease–related dementias (AD/ADRD) in more advanced disease stages, receive fewer formal services, and have worse health outcomes. For primary care providers confronting this challenge, community-based organizations can be key partners in supporting earlier identification of AD/ADRD and earlier entry into treatment, especially for minority groups. The New York University Center for the Study of Asian American Health, set out to culturally adapt and translate The Kickstart-Assess-Evaluate-Refer (KAER) framework created by the Gerontological Society of America to support earlier detection of dementia in Asian American communities and assist in this community-clinical coordinated care. We found that CBOs play a vital role in dementia care, and are often the first point of contact for concerns around cognitive impairment in ethnically diverse communities. A major strength of these centers is that they provide culturally appropriate group education that focuses on whole group quality of life, rather than singling out any individual. They also offer holistic family-centered care and staff have a deep understanding of cultural and social issues that affect care, including family dynamics. For primary care providers confronting the challenge of delivering evidence-based dementia care in the context of the busy primary care settings, community-based organizations can be key partners in supporting earlier identification of AD/ADRD and earlier entry into treatment, especially for minority groups.
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spelling pubmed-72650732020-06-10 Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations Sadarangani, Tina R. Salcedo, Vanessa Chodosh, Joshua Kwon, Simona Trinh-Shevrin, Chau Yi, Stella J Prim Care Community Health Commentaries Multiple studies show that racial and ethnic minorities with low socioeconomic status are diagnosed with Alzheimer’s disease and Alzheimer’s disease–related dementias (AD/ADRD) in more advanced disease stages, receive fewer formal services, and have worse health outcomes. For primary care providers confronting this challenge, community-based organizations can be key partners in supporting earlier identification of AD/ADRD and earlier entry into treatment, especially for minority groups. The New York University Center for the Study of Asian American Health, set out to culturally adapt and translate The Kickstart-Assess-Evaluate-Refer (KAER) framework created by the Gerontological Society of America to support earlier detection of dementia in Asian American communities and assist in this community-clinical coordinated care. We found that CBOs play a vital role in dementia care, and are often the first point of contact for concerns around cognitive impairment in ethnically diverse communities. A major strength of these centers is that they provide culturally appropriate group education that focuses on whole group quality of life, rather than singling out any individual. They also offer holistic family-centered care and staff have a deep understanding of cultural and social issues that affect care, including family dynamics. For primary care providers confronting the challenge of delivering evidence-based dementia care in the context of the busy primary care settings, community-based organizations can be key partners in supporting earlier identification of AD/ADRD and earlier entry into treatment, especially for minority groups. SAGE Publications 2020-06-01 /pmc/articles/PMC7265073/ /pubmed/32476553 http://dx.doi.org/10.1177/2150132720921680 Text en © The Author(s) 2020 https://creativecommons.org/licenses/by-nc/4.0/ This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage).
spellingShingle Commentaries
Sadarangani, Tina R.
Salcedo, Vanessa
Chodosh, Joshua
Kwon, Simona
Trinh-Shevrin, Chau
Yi, Stella
Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations
title Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations
title_full Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations
title_fullStr Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations
title_full_unstemmed Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations
title_short Redefining the Care Continuum to Create a Pipeline to Dementia Care for Minority Populations
title_sort redefining the care continuum to create a pipeline to dementia care for minority populations
topic Commentaries
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7265073/
https://www.ncbi.nlm.nih.gov/pubmed/32476553
http://dx.doi.org/10.1177/2150132720921680
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