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To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases
BACKGROUND: Over the past 30 years, the healthcare industry has increasingly turned its attention to rare diseases. Regulators have emphasized the need for clinical research in this area to be patient-centered. However, there is a lack of evidence concerning whether this need is actually met. In thi...
| Autores principales: | , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
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BioMed Central
2020
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7268539/ https://www.ncbi.nlm.nih.gov/pubmed/32493385 http://dx.doi.org/10.1186/s13023-020-01400-0 |