Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

BACKGROUND: Finding reliable information on one of more than 7000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Common to all, however, are difficulties regarding informatio...

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Detalles Bibliográficos
Autores principales: Litzkendorf, Svenja, Frank, Martin, Babac, Ana, Rosenfeldt, Daniel, Schauer, Franziska, Hartz, Tobias, Graf von der Schulenburg, J.-Matthias
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7275578/
https://www.ncbi.nlm.nih.gov/pubmed/32503483
http://dx.doi.org/10.1186/s12889-020-08926-9

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7275578/
https://www.ncbi.nlm.nih.gov/pubmed/32503483
http://dx.doi.org/10.1186/s12889-020-08926-9

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