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Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study
BACKGROUND: Finding reliable information on one of more than 7000 rare diseases is a major challenge for those affected. Since rare diseases are defined only by the prevalence criterion, a multitude of heterogeneous diseases are included. Common to all, however, are difficulties regarding informatio...
| Autores principales: | , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2020
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7275578/ https://www.ncbi.nlm.nih.gov/pubmed/32503483 http://dx.doi.org/10.1186/s12889-020-08926-9 |