Cargando…
A qualitative study on aspects of consent for genomic research in communities with low literacy
BACKGROUND: Low literacy of study participants in Sub - Saharan Africa has been associated with poor comprehension during the consenting process in research participation. The concerns in comprehension are far greater when consenting to participate in genomic studies due to the complexity of the sci...
Autores principales: | Bukini, Daima, Mbekenga, Columba, Nkya, Siana, Purvis, Lisa, McCurdy, Sheryl, Parker, Michael, Makani, Julie |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7291634/ https://www.ncbi.nlm.nih.gov/pubmed/32532327 http://dx.doi.org/10.1186/s12910-020-00488-0 |
Ejemplares similares
-
Perspectives on Building Sustainable Newborn Screening Programs for Sickle Cell Disease: Experience from Tanzania
por: Bukini, Daima, et al.
Publicado: (2021) -
Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry
por: Munung, Nchangwi Syntia, et al.
Publicado: (2022) -
Using DNA testing for the precise, definite, and low-cost diagnosis of sickle cell disease and other Haemoglobinopathies: findings from Tanzania
por: Christopher, Heavenlight, et al.
Publicado: (2021) -
Birth preparedness and complication readiness – a qualitative study among community members in rural Tanzania
por: August, Furaha, et al.
Publicado: (2015) -
Genetic variants at HbF‐modifier loci moderate anemia and leukocytosis in sickle cell disease in Tanzania
por: Mtatiro, Siana Nkya, et al.
Publicado: (2014)