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Data Collection in Multiple Sclerosis: The MSDS Approach

Multiple sclerosis (MS) is a frequent chronic inflammatory disease of the central nervous system that affects patients over decades. As the monitoring and treatment of MS become more personalized and complex, the individual assessment and collection of different parameters ranging from clinical asse...

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Autores principales: Ziemssen, Tjalf, Kern, Raimar, Voigt, Isabel, Haase, Rocco
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7308591/
https://www.ncbi.nlm.nih.gov/pubmed/32612566
http://dx.doi.org/10.3389/fneur.2020.00445
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author Ziemssen, Tjalf
Kern, Raimar
Voigt, Isabel
Haase, Rocco
author_facet Ziemssen, Tjalf
Kern, Raimar
Voigt, Isabel
Haase, Rocco
author_sort Ziemssen, Tjalf
collection PubMed
description Multiple sclerosis (MS) is a frequent chronic inflammatory disease of the central nervous system that affects patients over decades. As the monitoring and treatment of MS become more personalized and complex, the individual assessment and collection of different parameters ranging from clinical assessments via laboratory and imaging data to patient-reported data become increasingly important for innovative patient management in MS. These aspects predestine electronic data processing for use in MS documentation. Such technologies enable the rapid exchange of health information between patients, practitioners, and caregivers, regardless of time and location. In this perspective paper, we present our digital strategy from Dresden, where we are developing the Multiple Sclerosis Documentation System (MSDS) into an eHealth platform that can be used for multiple purposes. Various use cases are presented that implement this software platform and offer an important perspective for the innovative digital patient management in the future. A holistic patient management of the MS, electronically supported by clinical pathways, will have an important impact on other areas of patient care, such as neurorehabilitation.
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spelling pubmed-73085912020-06-30 Data Collection in Multiple Sclerosis: The MSDS Approach Ziemssen, Tjalf Kern, Raimar Voigt, Isabel Haase, Rocco Front Neurol Neurology Multiple sclerosis (MS) is a frequent chronic inflammatory disease of the central nervous system that affects patients over decades. As the monitoring and treatment of MS become more personalized and complex, the individual assessment and collection of different parameters ranging from clinical assessments via laboratory and imaging data to patient-reported data become increasingly important for innovative patient management in MS. These aspects predestine electronic data processing for use in MS documentation. Such technologies enable the rapid exchange of health information between patients, practitioners, and caregivers, regardless of time and location. In this perspective paper, we present our digital strategy from Dresden, where we are developing the Multiple Sclerosis Documentation System (MSDS) into an eHealth platform that can be used for multiple purposes. Various use cases are presented that implement this software platform and offer an important perspective for the innovative digital patient management in the future. A holistic patient management of the MS, electronically supported by clinical pathways, will have an important impact on other areas of patient care, such as neurorehabilitation. Frontiers Media S.A. 2020-06-16 /pmc/articles/PMC7308591/ /pubmed/32612566 http://dx.doi.org/10.3389/fneur.2020.00445 Text en Copyright © 2020 Ziemssen, Kern, Voigt and Haase. http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
spellingShingle Neurology
Ziemssen, Tjalf
Kern, Raimar
Voigt, Isabel
Haase, Rocco
Data Collection in Multiple Sclerosis: The MSDS Approach
title Data Collection in Multiple Sclerosis: The MSDS Approach
title_full Data Collection in Multiple Sclerosis: The MSDS Approach
title_fullStr Data Collection in Multiple Sclerosis: The MSDS Approach
title_full_unstemmed Data Collection in Multiple Sclerosis: The MSDS Approach
title_short Data Collection in Multiple Sclerosis: The MSDS Approach
title_sort data collection in multiple sclerosis: the msds approach
topic Neurology
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7308591/
https://www.ncbi.nlm.nih.gov/pubmed/32612566
http://dx.doi.org/10.3389/fneur.2020.00445
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