Cargando…

Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers

AIM: To investigate the barriers to home‐based palliative care for cancer patients from professional caregivers' experiences. DESIGN: A qualitative study. METHOD: This is a descriptive‐qualitative study carried out in the community‐based care. Twenty‐three participants took part in this study....

Descripción completa

Detalles Bibliográficos
Autores principales: Hassankhani, Hadi, Rahmani, Azad, Best, Amy, Taleghani, Fariba, Sanaat, Zohreh, Dehghannezhad, Javad
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7308678/
https://www.ncbi.nlm.nih.gov/pubmed/32587746
http://dx.doi.org/10.1002/nop2.503
_version_ 1783549043365904384
author Hassankhani, Hadi
Rahmani, Azad
Best, Amy
Taleghani, Fariba
Sanaat, Zohreh
Dehghannezhad, Javad
author_facet Hassankhani, Hadi
Rahmani, Azad
Best, Amy
Taleghani, Fariba
Sanaat, Zohreh
Dehghannezhad, Javad
author_sort Hassankhani, Hadi
collection PubMed
description AIM: To investigate the barriers to home‐based palliative care for cancer patients from professional caregivers' experiences. DESIGN: A qualitative study. METHOD: This is a descriptive‐qualitative study carried out in the community‐based care. Twenty‐three participants took part in this study. Data were collected through semi‐structured interviews. RESULTS: Data analysis led to the identification of three category of barriers including the lack of instructions (the lack of clinical practice guidelines, the ambiguity of tariffs and the lack of insurance coverage), family desperation (family views of prognosis, distrust and poverty) and lack of professionalism (limited knowledge, the use of amateur nurses and siloed care). Developing a care protocol and providing resources support contribute to the development of home‐based palliative care. Moreover, the education of families and training courses for nurses must be fostered.
format Online
Article
Text
id pubmed-7308678
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher John Wiley and Sons Inc.
record_format MEDLINE/PubMed
spelling pubmed-73086782020-06-24 Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers Hassankhani, Hadi Rahmani, Azad Best, Amy Taleghani, Fariba Sanaat, Zohreh Dehghannezhad, Javad Nurs Open Research Articles AIM: To investigate the barriers to home‐based palliative care for cancer patients from professional caregivers' experiences. DESIGN: A qualitative study. METHOD: This is a descriptive‐qualitative study carried out in the community‐based care. Twenty‐three participants took part in this study. Data were collected through semi‐structured interviews. RESULTS: Data analysis led to the identification of three category of barriers including the lack of instructions (the lack of clinical practice guidelines, the ambiguity of tariffs and the lack of insurance coverage), family desperation (family views of prognosis, distrust and poverty) and lack of professionalism (limited knowledge, the use of amateur nurses and siloed care). Developing a care protocol and providing resources support contribute to the development of home‐based palliative care. Moreover, the education of families and training courses for nurses must be fostered. John Wiley and Sons Inc. 2020-04-22 /pmc/articles/PMC7308678/ /pubmed/32587746 http://dx.doi.org/10.1002/nop2.503 Text en © 2020 The Authors. Nursing Open published by John Wiley & Sons Ltd. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Research Articles
Hassankhani, Hadi
Rahmani, Azad
Best, Amy
Taleghani, Fariba
Sanaat, Zohreh
Dehghannezhad, Javad
Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers
title Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers
title_full Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers
title_fullStr Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers
title_full_unstemmed Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers
title_short Barriers to home‐based palliative care in people with cancer: A qualitative study of the perspective of caregivers
title_sort barriers to home‐based palliative care in people with cancer: a qualitative study of the perspective of caregivers
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7308678/
https://www.ncbi.nlm.nih.gov/pubmed/32587746
http://dx.doi.org/10.1002/nop2.503
work_keys_str_mv AT hassankhanihadi barrierstohomebasedpalliativecareinpeoplewithcanceraqualitativestudyoftheperspectiveofcaregivers
AT rahmaniazad barrierstohomebasedpalliativecareinpeoplewithcanceraqualitativestudyoftheperspectiveofcaregivers
AT bestamy barrierstohomebasedpalliativecareinpeoplewithcanceraqualitativestudyoftheperspectiveofcaregivers
AT taleghanifariba barrierstohomebasedpalliativecareinpeoplewithcanceraqualitativestudyoftheperspectiveofcaregivers
AT sanaatzohreh barrierstohomebasedpalliativecareinpeoplewithcanceraqualitativestudyoftheperspectiveofcaregivers
AT dehghannezhadjavad barrierstohomebasedpalliativecareinpeoplewithcanceraqualitativestudyoftheperspectiveofcaregivers