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When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study

AIM: To investigate the experiences and perspectives of everyday life among patients on lifelong haemodialysis and their partners. DESIGN: A qualitative exploratory study with a phenomenological–hermeneutic approach. METHOD: Data were collected through individual interviews. In total, five patients...

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Detalles Bibliográficos
Autores principales: Frandsen, Christina Egmose, Pedersen, Erik Bo, Agerskov, Hanne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7308691/
https://www.ncbi.nlm.nih.gov/pubmed/32587730
http://dx.doi.org/10.1002/nop2.487
Descripción
Sumario:AIM: To investigate the experiences and perspectives of everyday life among patients on lifelong haemodialysis and their partners. DESIGN: A qualitative exploratory study with a phenomenological–hermeneutic approach. METHOD: Data were collected through individual interviews. In total, five patients in haemodialysis and their partners were included in the study. Data were analysed with inspiration from Ricoeur's theory around narratives and interpretation on three levels: naïve reading, structural analysis and critical interpretation and discussion. Data was collected between February 2018–June 2019. RESULTS: Limitations caused by the disease and time‐consuming treatment influenced daily life. In particular, the partners needed to have time on their own. Knowledge about the disease and participation in treatment were significant to both patients and partners. There were considerations about illness progression. Relationships to their social networks and healthcare professionals were a significant and important part of daily life for both parties.