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When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study

AIM: To investigate the experiences and perspectives of everyday life among patients on lifelong haemodialysis and their partners. DESIGN: A qualitative exploratory study with a phenomenological–hermeneutic approach. METHOD: Data were collected through individual interviews. In total, five patients...

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Detalles Bibliográficos
Autores principales: Frandsen, Christina Egmose, Pedersen, Erik Bo, Agerskov, Hanne
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7308691/
https://www.ncbi.nlm.nih.gov/pubmed/32587730
http://dx.doi.org/10.1002/nop2.487
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author Frandsen, Christina Egmose
Pedersen, Erik Bo
Agerskov, Hanne
author_facet Frandsen, Christina Egmose
Pedersen, Erik Bo
Agerskov, Hanne
author_sort Frandsen, Christina Egmose
collection PubMed
description AIM: To investigate the experiences and perspectives of everyday life among patients on lifelong haemodialysis and their partners. DESIGN: A qualitative exploratory study with a phenomenological–hermeneutic approach. METHOD: Data were collected through individual interviews. In total, five patients in haemodialysis and their partners were included in the study. Data were analysed with inspiration from Ricoeur's theory around narratives and interpretation on three levels: naïve reading, structural analysis and critical interpretation and discussion. Data was collected between February 2018–June 2019. RESULTS: Limitations caused by the disease and time‐consuming treatment influenced daily life. In particular, the partners needed to have time on their own. Knowledge about the disease and participation in treatment were significant to both patients and partners. There were considerations about illness progression. Relationships to their social networks and healthcare professionals were a significant and important part of daily life for both parties.
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spelling pubmed-73086912020-06-24 When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study Frandsen, Christina Egmose Pedersen, Erik Bo Agerskov, Hanne Nurs Open Research Articles AIM: To investigate the experiences and perspectives of everyday life among patients on lifelong haemodialysis and their partners. DESIGN: A qualitative exploratory study with a phenomenological–hermeneutic approach. METHOD: Data were collected through individual interviews. In total, five patients in haemodialysis and their partners were included in the study. Data were analysed with inspiration from Ricoeur's theory around narratives and interpretation on three levels: naïve reading, structural analysis and critical interpretation and discussion. Data was collected between February 2018–June 2019. RESULTS: Limitations caused by the disease and time‐consuming treatment influenced daily life. In particular, the partners needed to have time on their own. Knowledge about the disease and participation in treatment were significant to both patients and partners. There were considerations about illness progression. Relationships to their social networks and healthcare professionals were a significant and important part of daily life for both parties. John Wiley and Sons Inc. 2020-04-02 /pmc/articles/PMC7308691/ /pubmed/32587730 http://dx.doi.org/10.1002/nop2.487 Text en © 2020 The Authors. Nursing Open published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.
spellingShingle Research Articles
Frandsen, Christina Egmose
Pedersen, Erik Bo
Agerskov, Hanne
When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study
title When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study
title_full When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study
title_fullStr When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study
title_full_unstemmed When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study
title_short When kidney transplantation is not an option: Haemodialysis patients' and partners' experiences—A qualitative study
title_sort when kidney transplantation is not an option: haemodialysis patients' and partners' experiences—a qualitative study
topic Research Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7308691/
https://www.ncbi.nlm.nih.gov/pubmed/32587730
http://dx.doi.org/10.1002/nop2.487
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