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Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study
The role of caregivers in homecare settings is relevant to the patient’s wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7312962/ https://www.ncbi.nlm.nih.gov/pubmed/32517057 http://dx.doi.org/10.3390/ijerph17114036 |
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author | Capodanno, Isabella Rocchi, Mirta Prandi, Rossella Pedroni, Cristina Tamagnini, Enrica Alfieri, Pierluigi Merli, Francesco Ghirotto, Luca |
author_facet | Capodanno, Isabella Rocchi, Mirta Prandi, Rossella Pedroni, Cristina Tamagnini, Enrica Alfieri, Pierluigi Merli, Francesco Ghirotto, Luca |
author_sort | Capodanno, Isabella |
collection | PubMed |
description | The role of caregivers in homecare settings is relevant to the patient’s wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of primary caregivers of patients with hematological malignancies within home care. We conducted a phenomenological study based on interviews with 17 primary caregivers of hematological patients. Analysis of the contents led to the identification of five main themes. Perhaps, the innovative aspects of this study can be summarized in three points: This service was demonstrated to fulfil the ethical aspects of providing the patient with a dignified accompaniment to the end of life. Secondly, the efficiency of the service and the benefit are directly dependent on the caregivers’ wellbeing, so knowledge of the dynamics and emotions involved can lead to the development and implementation of programs for hematological malignancies. Lastly, a collaborative caregivers–professionals relationship can improve a sense of accomplishment for all parties involved, lessening the family’s frustration related to not having done their best. Home care brings significant benefits for both the patient and the caregivers and fulfils the ethical obligation of providing the patient dignified end-of-life care. |
format | Online Article Text |
id | pubmed-7312962 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-73129622020-06-29 Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study Capodanno, Isabella Rocchi, Mirta Prandi, Rossella Pedroni, Cristina Tamagnini, Enrica Alfieri, Pierluigi Merli, Francesco Ghirotto, Luca Int J Environ Res Public Health Article The role of caregivers in homecare settings is relevant to the patient’s wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of primary caregivers of patients with hematological malignancies within home care. We conducted a phenomenological study based on interviews with 17 primary caregivers of hematological patients. Analysis of the contents led to the identification of five main themes. Perhaps, the innovative aspects of this study can be summarized in three points: This service was demonstrated to fulfil the ethical aspects of providing the patient with a dignified accompaniment to the end of life. Secondly, the efficiency of the service and the benefit are directly dependent on the caregivers’ wellbeing, so knowledge of the dynamics and emotions involved can lead to the development and implementation of programs for hematological malignancies. Lastly, a collaborative caregivers–professionals relationship can improve a sense of accomplishment for all parties involved, lessening the family’s frustration related to not having done their best. Home care brings significant benefits for both the patient and the caregivers and fulfils the ethical obligation of providing the patient dignified end-of-life care. MDPI 2020-06-05 2020-06 /pmc/articles/PMC7312962/ /pubmed/32517057 http://dx.doi.org/10.3390/ijerph17114036 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Capodanno, Isabella Rocchi, Mirta Prandi, Rossella Pedroni, Cristina Tamagnini, Enrica Alfieri, Pierluigi Merli, Francesco Ghirotto, Luca Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study |
title | Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study |
title_full | Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study |
title_fullStr | Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study |
title_full_unstemmed | Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study |
title_short | Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study |
title_sort | caregivers of patients with hematological malignancies within home care: a phenomenological study |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7312962/ https://www.ncbi.nlm.nih.gov/pubmed/32517057 http://dx.doi.org/10.3390/ijerph17114036 |
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