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Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study

The role of caregivers in homecare settings is relevant to the patient’s wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of...

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Autores principales: Capodanno, Isabella, Rocchi, Mirta, Prandi, Rossella, Pedroni, Cristina, Tamagnini, Enrica, Alfieri, Pierluigi, Merli, Francesco, Ghirotto, Luca
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7312962/
https://www.ncbi.nlm.nih.gov/pubmed/32517057
http://dx.doi.org/10.3390/ijerph17114036
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author Capodanno, Isabella
Rocchi, Mirta
Prandi, Rossella
Pedroni, Cristina
Tamagnini, Enrica
Alfieri, Pierluigi
Merli, Francesco
Ghirotto, Luca
author_facet Capodanno, Isabella
Rocchi, Mirta
Prandi, Rossella
Pedroni, Cristina
Tamagnini, Enrica
Alfieri, Pierluigi
Merli, Francesco
Ghirotto, Luca
author_sort Capodanno, Isabella
collection PubMed
description The role of caregivers in homecare settings is relevant to the patient’s wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of primary caregivers of patients with hematological malignancies within home care. We conducted a phenomenological study based on interviews with 17 primary caregivers of hematological patients. Analysis of the contents led to the identification of five main themes. Perhaps, the innovative aspects of this study can be summarized in three points: This service was demonstrated to fulfil the ethical aspects of providing the patient with a dignified accompaniment to the end of life. Secondly, the efficiency of the service and the benefit are directly dependent on the caregivers’ wellbeing, so knowledge of the dynamics and emotions involved can lead to the development and implementation of programs for hematological malignancies. Lastly, a collaborative caregivers–professionals relationship can improve a sense of accomplishment for all parties involved, lessening the family’s frustration related to not having done their best. Home care brings significant benefits for both the patient and the caregivers and fulfils the ethical obligation of providing the patient dignified end-of-life care.
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spelling pubmed-73129622020-06-29 Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study Capodanno, Isabella Rocchi, Mirta Prandi, Rossella Pedroni, Cristina Tamagnini, Enrica Alfieri, Pierluigi Merli, Francesco Ghirotto, Luca Int J Environ Res Public Health Article The role of caregivers in homecare settings is relevant to the patient’s wellbeing and quality of life. This phenomenon is well described in the literature for the oncological setting but not specifically for that of hematological malignancies. The aim of this study was to explore the experience of primary caregivers of patients with hematological malignancies within home care. We conducted a phenomenological study based on interviews with 17 primary caregivers of hematological patients. Analysis of the contents led to the identification of five main themes. Perhaps, the innovative aspects of this study can be summarized in three points: This service was demonstrated to fulfil the ethical aspects of providing the patient with a dignified accompaniment to the end of life. Secondly, the efficiency of the service and the benefit are directly dependent on the caregivers’ wellbeing, so knowledge of the dynamics and emotions involved can lead to the development and implementation of programs for hematological malignancies. Lastly, a collaborative caregivers–professionals relationship can improve a sense of accomplishment for all parties involved, lessening the family’s frustration related to not having done their best. Home care brings significant benefits for both the patient and the caregivers and fulfils the ethical obligation of providing the patient dignified end-of-life care. MDPI 2020-06-05 2020-06 /pmc/articles/PMC7312962/ /pubmed/32517057 http://dx.doi.org/10.3390/ijerph17114036 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Capodanno, Isabella
Rocchi, Mirta
Prandi, Rossella
Pedroni, Cristina
Tamagnini, Enrica
Alfieri, Pierluigi
Merli, Francesco
Ghirotto, Luca
Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study
title Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study
title_full Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study
title_fullStr Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study
title_full_unstemmed Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study
title_short Caregivers of Patients with Hematological Malignancies within Home Care: A Phenomenological Study
title_sort caregivers of patients with hematological malignancies within home care: a phenomenological study
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7312962/
https://www.ncbi.nlm.nih.gov/pubmed/32517057
http://dx.doi.org/10.3390/ijerph17114036
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