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Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study

BACKGROUND AND AIMS: Palliative care is an important area of intervention in neurodegenerative diseases. The aim of this study is to understand the relationship between Palliative Care Needs and Caregiver Burden among persons diagnosed with neurodegenerative diseases. METHODS: A cross-sectional stud...

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Autores principales: Lithin, Zacharias, Thomas, Priya T., Warrier, G. Manjusha, Bhaskar, Adhin, Nashi, Saraswathi, Vengalil, Seena, Polavarapu, Kiran, Kumar, Preethish, Yadav, Ravi, Alladi, Suvarna, Atchayaram, Nalini, Pal, Pramod K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Wolters Kluwer - Medknow 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7313617/
https://www.ncbi.nlm.nih.gov/pubmed/32606518
http://dx.doi.org/10.4103/aian.AIAN_304_19
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author Lithin, Zacharias
Thomas, Priya T.
Warrier, G. Manjusha
Bhaskar, Adhin
Nashi, Saraswathi
Vengalil, Seena
Polavarapu, Kiran
Kumar, Preethish
Yadav, Ravi
Alladi, Suvarna
Atchayaram, Nalini
Pal, Pramod K.
author_facet Lithin, Zacharias
Thomas, Priya T.
Warrier, G. Manjusha
Bhaskar, Adhin
Nashi, Saraswathi
Vengalil, Seena
Polavarapu, Kiran
Kumar, Preethish
Yadav, Ravi
Alladi, Suvarna
Atchayaram, Nalini
Pal, Pramod K.
author_sort Lithin, Zacharias
collection PubMed
description BACKGROUND AND AIMS: Palliative care is an important area of intervention in neurodegenerative diseases. The aim of this study is to understand the relationship between Palliative Care Needs and Caregiver Burden among persons diagnosed with neurodegenerative diseases. METHODS: A cross-sectional study design was adopted to explore the research problem. A prospective sample of 120 participants (60 Patient Caregiver dyads) of Motor Neurone Disease (MND) and Parkinson's disease (PD) were recruited for the study based on inclusion and exclusion criteria from a quaternary referral care centre for neurology in south India. Patients seeking care were recruited for the study consecutively. Palliative care outcome scale and Zarit Burden Interview scale were administered to understand the relationship. RESULTS: It was found that Palliative care outcomes score was positively correlated with caregiver burden (r = 0.597), showing that there is a bi-directional relationship between palliative care needs and caregiver burden. CONCLUSION: Irrespective of the differences in illness characteristics, the study found that palliative care needs are high among chronic neurological conditions which requires a noncategorical psychosocial approach in ensuring care.
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spelling pubmed-73136172020-06-29 Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study Lithin, Zacharias Thomas, Priya T. Warrier, G. Manjusha Bhaskar, Adhin Nashi, Saraswathi Vengalil, Seena Polavarapu, Kiran Kumar, Preethish Yadav, Ravi Alladi, Suvarna Atchayaram, Nalini Pal, Pramod K. Ann Indian Acad Neurol Original Article BACKGROUND AND AIMS: Palliative care is an important area of intervention in neurodegenerative diseases. The aim of this study is to understand the relationship between Palliative Care Needs and Caregiver Burden among persons diagnosed with neurodegenerative diseases. METHODS: A cross-sectional study design was adopted to explore the research problem. A prospective sample of 120 participants (60 Patient Caregiver dyads) of Motor Neurone Disease (MND) and Parkinson's disease (PD) were recruited for the study based on inclusion and exclusion criteria from a quaternary referral care centre for neurology in south India. Patients seeking care were recruited for the study consecutively. Palliative care outcome scale and Zarit Burden Interview scale were administered to understand the relationship. RESULTS: It was found that Palliative care outcomes score was positively correlated with caregiver burden (r = 0.597), showing that there is a bi-directional relationship between palliative care needs and caregiver burden. CONCLUSION: Irrespective of the differences in illness characteristics, the study found that palliative care needs are high among chronic neurological conditions which requires a noncategorical psychosocial approach in ensuring care. Wolters Kluwer - Medknow 2020 2020-06-10 /pmc/articles/PMC7313617/ /pubmed/32606518 http://dx.doi.org/10.4103/aian.AIAN_304_19 Text en Copyright: © 2006 - 2020 Annals of Indian Academy of Neurology http://creativecommons.org/licenses/by-nc-sa/4.0 This is an open access journal, and articles are distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 License, which allows others to remix, tweak, and build upon the work non-commercially, as long as appropriate credit is given and the new creations are licensed under the identical terms.
spellingShingle Original Article
Lithin, Zacharias
Thomas, Priya T.
Warrier, G. Manjusha
Bhaskar, Adhin
Nashi, Saraswathi
Vengalil, Seena
Polavarapu, Kiran
Kumar, Preethish
Yadav, Ravi
Alladi, Suvarna
Atchayaram, Nalini
Pal, Pramod K.
Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study
title Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study
title_full Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study
title_fullStr Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study
title_full_unstemmed Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study
title_short Palliative Care Needs and Care Giver Burden in Neurodegenerative Diseases: A Cross Sectional Study
title_sort palliative care needs and care giver burden in neurodegenerative diseases: a cross sectional study
topic Original Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7313617/
https://www.ncbi.nlm.nih.gov/pubmed/32606518
http://dx.doi.org/10.4103/aian.AIAN_304_19
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