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The convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes

Experiences of cancer diagnosis are changing in light of both the increasingly technological‐clinical diagnostic processes and the socio‐political context in which interpersonal relations take place. This has raised questions about how we might understand patient–doctor relationship marked by asymme...

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Autores principales: MacArtney, John I., Andersen, Rikke S., Malmström, Marlene, Rasmussen, Birgit, Ziebland, Sue
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7318254/
https://www.ncbi.nlm.nih.gov/pubmed/32103515
http://dx.doi.org/10.1111/1467-9566.13067
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author MacArtney, John I.
Andersen, Rikke S.
Malmström, Marlene
Rasmussen, Birgit
Ziebland, Sue
author_facet MacArtney, John I.
Andersen, Rikke S.
Malmström, Marlene
Rasmussen, Birgit
Ziebland, Sue
author_sort MacArtney, John I.
collection PubMed
description Experiences of cancer diagnosis are changing in light of both the increasingly technological‐clinical diagnostic processes and the socio‐political context in which interpersonal relations take place. This has raised questions about how we might understand patient–doctor relationship marked by asymmetries of knowledge and social capital, but that emphasise patients’ empowered choices and individualised care. As part of an interview study of 155 participants with bowel or lung cancer across Denmark, England and Sweden, we explored participants’ stories of the decisions made during their cancer diagnostic process. By focusing on the intersections of care, choice and medical authority – a convivial pastoral dynamic – we provide a conceptual analysis of the normative ambivalences in people's stories of their cancer diagnosis. We found that participants drew from care, choice and medical authority to emphasise their relationality and interdependence with their doctors in their stories of their diagnosis. Importantly negotiations of an asymmetrical patient–doctor relationship were part of an on‐going realisation of the healthcare processes as a human endeavour. We were therefore able to draw attention to the limitations of dichotomising emancipatory‐empowerment discourses and argue for a theorisation of the patient–doctor relationship as a contextually bounded and relationally ambivalent humanity.
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spelling pubmed-73182542020-06-29 The convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes MacArtney, John I. Andersen, Rikke S. Malmström, Marlene Rasmussen, Birgit Ziebland, Sue Sociol Health Illn Original Articles Experiences of cancer diagnosis are changing in light of both the increasingly technological‐clinical diagnostic processes and the socio‐political context in which interpersonal relations take place. This has raised questions about how we might understand patient–doctor relationship marked by asymmetries of knowledge and social capital, but that emphasise patients’ empowered choices and individualised care. As part of an interview study of 155 participants with bowel or lung cancer across Denmark, England and Sweden, we explored participants’ stories of the decisions made during their cancer diagnostic process. By focusing on the intersections of care, choice and medical authority – a convivial pastoral dynamic – we provide a conceptual analysis of the normative ambivalences in people's stories of their cancer diagnosis. We found that participants drew from care, choice and medical authority to emphasise their relationality and interdependence with their doctors in their stories of their diagnosis. Importantly negotiations of an asymmetrical patient–doctor relationship were part of an on‐going realisation of the healthcare processes as a human endeavour. We were therefore able to draw attention to the limitations of dichotomising emancipatory‐empowerment discourses and argue for a theorisation of the patient–doctor relationship as a contextually bounded and relationally ambivalent humanity. John Wiley and Sons Inc. 2020-02-26 2020-05 /pmc/articles/PMC7318254/ /pubmed/32103515 http://dx.doi.org/10.1111/1467-9566.13067 Text en © 2020 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL. This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
spellingShingle Original Articles
MacArtney, John I.
Andersen, Rikke S.
Malmström, Marlene
Rasmussen, Birgit
Ziebland, Sue
The convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes
title The convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes
title_full The convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes
title_fullStr The convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes
title_full_unstemmed The convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes
title_short The convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes
title_sort convivial and the pastoral in patient–doctor relationships: a multi‐country study of patient stories of care, choice and medical authority in cancer diagnostic processes
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7318254/
https://www.ncbi.nlm.nih.gov/pubmed/32103515
http://dx.doi.org/10.1111/1467-9566.13067
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