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COVID-19: Public and patient involvement, now more than ever

The research community is responding with speed to the COVID-19 pandemic, with rapid response mechanisms to fund research, shortened application turnaround times, and expedited research ethics processes. Public and patient involvement (PPI) is under pressure in this rapid response research, where it...

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Autores principales: Murphy, Edel, Tierney, Edel, Ní Shé, Éidín, Killilea, Martha, Donaghey, Casey, Daly, Anne, Roche, Mary, Mac Loughlin, Deirdre, Dinneen, Sean
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7327728/
https://www.ncbi.nlm.nih.gov/pubmed/32666039
http://dx.doi.org/10.12688/hrbopenres.13067.1
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author Murphy, Edel
Tierney, Edel
Ní Shé, Éidín
Killilea, Martha
Donaghey, Casey
Daly, Anne
Roche, Mary
Mac Loughlin, Deirdre
Dinneen, Sean
author_facet Murphy, Edel
Tierney, Edel
Ní Shé, Éidín
Killilea, Martha
Donaghey, Casey
Daly, Anne
Roche, Mary
Mac Loughlin, Deirdre
Dinneen, Sean
author_sort Murphy, Edel
collection PubMed
description The research community is responding with speed to the COVID-19 pandemic, with rapid response mechanisms to fund research, shortened application turnaround times, and expedited research ethics processes. Public and patient involvement (PPI) is under pressure in this rapid response research, where it is easy for researchers and funders to dismiss PPI as non-essential, an added extra, a “nice to have”.  In this open letter, we, researchers and PPI contributors, argue that PPI is important, now more than ever. The pandemic is impacting everyone in society, with normal rules of engagement discarded. The solution to overcoming this virus will come from many different sources and many changes will emerge to healthcare delivery and to how we live our lives. It is essential that the research to find solutions is shaped by all who will be impacted: the public and the patient must be central contributors and their voice must be hear.
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spelling pubmed-73277282020-07-13 COVID-19: Public and patient involvement, now more than ever Murphy, Edel Tierney, Edel Ní Shé, Éidín Killilea, Martha Donaghey, Casey Daly, Anne Roche, Mary Mac Loughlin, Deirdre Dinneen, Sean HRB Open Res Open Letter The research community is responding with speed to the COVID-19 pandemic, with rapid response mechanisms to fund research, shortened application turnaround times, and expedited research ethics processes. Public and patient involvement (PPI) is under pressure in this rapid response research, where it is easy for researchers and funders to dismiss PPI as non-essential, an added extra, a “nice to have”.  In this open letter, we, researchers and PPI contributors, argue that PPI is important, now more than ever. The pandemic is impacting everyone in society, with normal rules of engagement discarded. The solution to overcoming this virus will come from many different sources and many changes will emerge to healthcare delivery and to how we live our lives. It is essential that the research to find solutions is shaped by all who will be impacted: the public and the patient must be central contributors and their voice must be hear. F1000 Research Limited 2020-06-08 /pmc/articles/PMC7327728/ /pubmed/32666039 http://dx.doi.org/10.12688/hrbopenres.13067.1 Text en Copyright: © 2020 Murphy E et al. http://creativecommons.org/licenses/by/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
spellingShingle Open Letter
Murphy, Edel
Tierney, Edel
Ní Shé, Éidín
Killilea, Martha
Donaghey, Casey
Daly, Anne
Roche, Mary
Mac Loughlin, Deirdre
Dinneen, Sean
COVID-19: Public and patient involvement, now more than ever
title COVID-19: Public and patient involvement, now more than ever
title_full COVID-19: Public and patient involvement, now more than ever
title_fullStr COVID-19: Public and patient involvement, now more than ever
title_full_unstemmed COVID-19: Public and patient involvement, now more than ever
title_short COVID-19: Public and patient involvement, now more than ever
title_sort covid-19: public and patient involvement, now more than ever
topic Open Letter
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7327728/
https://www.ncbi.nlm.nih.gov/pubmed/32666039
http://dx.doi.org/10.12688/hrbopenres.13067.1
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