Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry

BACKGROUND: Sickle cell disease (SCD) is an autosomal recessive blood disorder affecting approximately 100,000 Americans and 3.1 million people globally. The scarcity of relevant knowledge and experience with rare diseases creates a unique need for cooperation and infrastructure to overcome challeng...

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Detalles Bibliográficos
Autores principales: Glassberg, Jeffrey A., Linton, Elizabeth A., Burson, Katrina, Hendershot, Tabitha, Telfair, Joseph, Kanter, Julie, Gordeuk, Victor R., King, Allison A., Melvin, Cathy L., Shah, Nirmish, Hankins, Jane S., Epié, Axel Yannick, Richardson, Lynne D.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7341606/
https://www.ncbi.nlm.nih.gov/pubmed/32635939
http://dx.doi.org/10.1186/s13023-020-01457-x

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