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Human Rights and the Confinement of People Living with Dementia in Care Homes

This paper responds to growing concerns in human rights practice and scholarship about the confinement of people living with dementia in care homes. Moving beyond the existing focus in human rights scholarship on the role of restrictive practices in confinement, the paper broadens and nuances our un...

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Detalles Bibliográficos
Autores principales: Steele, Linda, Carr, Ray, Swaffer, Kate, Phillipson, Lyn, Fleming, Richard
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Harvard University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7348416/
https://www.ncbi.nlm.nih.gov/pubmed/32669785
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author Steele, Linda
Carr, Ray
Swaffer, Kate
Phillipson, Lyn
Fleming, Richard
author_facet Steele, Linda
Carr, Ray
Swaffer, Kate
Phillipson, Lyn
Fleming, Richard
author_sort Steele, Linda
collection PubMed
description This paper responds to growing concerns in human rights practice and scholarship about the confinement of people living with dementia in care homes. Moving beyond the existing focus in human rights scholarship on the role of restrictive practices in confinement, the paper broadens and nuances our understanding of confinement by exploring the daily facilitators of confinement in the lives of people with dementia. The paper draws on data from focus groups and interviews with people living with dementia, care partners, aged care workers, and lawyers and advocates about Australian care homes. It argues that microlevel interrelated and compounding factors contribute to human rights abuses of people living with dementia related to limits on freedom of movement and community access of people living with dementia, at times irrespective of the use of restrictive practices. These factors include immobilization and neglect of residents, limited and segregated recreational activities, concerns about duty of care and liability, apprehension of community exclusion, and pathologization and subversion of resistance. It is necessary to challenge the organizational, cultural, economic, and social dynamics that shape day-to-day, microlevel, routine, and compounding factors that remove the agency of people living with dementia and in turn facilitate entrenched and systematic human rights breaches in care homes.
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spelling pubmed-73484162020-07-14 Human Rights and the Confinement of People Living with Dementia in Care Homes Steele, Linda Carr, Ray Swaffer, Kate Phillipson, Lyn Fleming, Richard Health Hum Rights Research-Article This paper responds to growing concerns in human rights practice and scholarship about the confinement of people living with dementia in care homes. Moving beyond the existing focus in human rights scholarship on the role of restrictive practices in confinement, the paper broadens and nuances our understanding of confinement by exploring the daily facilitators of confinement in the lives of people with dementia. The paper draws on data from focus groups and interviews with people living with dementia, care partners, aged care workers, and lawyers and advocates about Australian care homes. It argues that microlevel interrelated and compounding factors contribute to human rights abuses of people living with dementia related to limits on freedom of movement and community access of people living with dementia, at times irrespective of the use of restrictive practices. These factors include immobilization and neglect of residents, limited and segregated recreational activities, concerns about duty of care and liability, apprehension of community exclusion, and pathologization and subversion of resistance. It is necessary to challenge the organizational, cultural, economic, and social dynamics that shape day-to-day, microlevel, routine, and compounding factors that remove the agency of people living with dementia and in turn facilitate entrenched and systematic human rights breaches in care homes. Harvard University Press 2020-06 /pmc/articles/PMC7348416/ /pubmed/32669785 Text en Copyright © 2020 Steele, Carr, Swaffer, Phillipson, and Fleming. http://creativecommons.org/licenses/by-nc/4.0/ This is an open access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original author and source are credited.
spellingShingle Research-Article
Steele, Linda
Carr, Ray
Swaffer, Kate
Phillipson, Lyn
Fleming, Richard
Human Rights and the Confinement of People Living with Dementia in Care Homes
title Human Rights and the Confinement of People Living with Dementia in Care Homes
title_full Human Rights and the Confinement of People Living with Dementia in Care Homes
title_fullStr Human Rights and the Confinement of People Living with Dementia in Care Homes
title_full_unstemmed Human Rights and the Confinement of People Living with Dementia in Care Homes
title_short Human Rights and the Confinement of People Living with Dementia in Care Homes
title_sort human rights and the confinement of people living with dementia in care homes
topic Research-Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7348416/
https://www.ncbi.nlm.nih.gov/pubmed/32669785
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