Cargando…

The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)

We have developed a Europe-wide approach to investigating the economic impact of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), facilitating acquisition of information on the economic burden of ME/CFS, and international comparisons of economic costs between countries. The economic burd...

Descripción completa

Detalles Bibliográficos
Autores principales: Pheby, Derek F.H., Araja, Diana, Berkis, Uldis, Brenna, Elenka, Cullinan, John, de Korwin, Jean-Dominique, Gitto, Lara, Hughes, Dyfrig A, Hunter, Rachael M, Trepel, Dominic, Wang-Steverding, Xia
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7349118/
https://www.ncbi.nlm.nih.gov/pubmed/32272608
http://dx.doi.org/10.3390/healthcare8020088
_version_ 1783556988925378560
author Pheby, Derek F.H.
Araja, Diana
Berkis, Uldis
Brenna, Elenka
Cullinan, John
de Korwin, Jean-Dominique
Gitto, Lara
Hughes, Dyfrig A
Hunter, Rachael M
Trepel, Dominic
Wang-Steverding, Xia
author_facet Pheby, Derek F.H.
Araja, Diana
Berkis, Uldis
Brenna, Elenka
Cullinan, John
de Korwin, Jean-Dominique
Gitto, Lara
Hughes, Dyfrig A
Hunter, Rachael M
Trepel, Dominic
Wang-Steverding, Xia
author_sort Pheby, Derek F.H.
collection PubMed
description We have developed a Europe-wide approach to investigating the economic impact of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), facilitating acquisition of information on the economic burden of ME/CFS, and international comparisons of economic costs between countries. The economic burden of ME/CFS in Europe appears large, with productivity losses most significant, giving scope for substantial savings through effective prevention and treatment. However, economic studies of ME/CFS, including cost-of-illness analyses and economic evaluations of interventions, are problematic due to different, arbitrary case definitions, and unwillingness of doctors to diagnose it. We therefore lack accurate incidence and prevalence data, with no obvious way to estimate costs incurred by undiagnosed patients. Other problems include, as for other conditions, difficulties estimating direct and indirect costs incurred by healthcare systems, patients and families, and heterogeneous healthcare systems and patterns of economic development across countries. We have made recommendations, including use of the Fukuda (CDC-1994) case definition and Canadian Consensus Criteria (CCC), a pan-European common symptom checklist, and implementation of prevalence-based cost-of-illness studies in different countries using an agreed data list. We recommend using purchasing power parities (PPP) to facilitate international comparisons, and EuroQol-5D as a generic measure of health status and multi-attribute utility instrument to inform future economic evaluations in ME/CFS.
format Online
Article
Text
id pubmed-7349118
institution National Center for Biotechnology Information
language English
publishDate 2020
publisher MDPI
record_format MEDLINE/PubMed
spelling pubmed-73491182020-07-22 The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) Pheby, Derek F.H. Araja, Diana Berkis, Uldis Brenna, Elenka Cullinan, John de Korwin, Jean-Dominique Gitto, Lara Hughes, Dyfrig A Hunter, Rachael M Trepel, Dominic Wang-Steverding, Xia Healthcare (Basel) Review We have developed a Europe-wide approach to investigating the economic impact of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), facilitating acquisition of information on the economic burden of ME/CFS, and international comparisons of economic costs between countries. The economic burden of ME/CFS in Europe appears large, with productivity losses most significant, giving scope for substantial savings through effective prevention and treatment. However, economic studies of ME/CFS, including cost-of-illness analyses and economic evaluations of interventions, are problematic due to different, arbitrary case definitions, and unwillingness of doctors to diagnose it. We therefore lack accurate incidence and prevalence data, with no obvious way to estimate costs incurred by undiagnosed patients. Other problems include, as for other conditions, difficulties estimating direct and indirect costs incurred by healthcare systems, patients and families, and heterogeneous healthcare systems and patterns of economic development across countries. We have made recommendations, including use of the Fukuda (CDC-1994) case definition and Canadian Consensus Criteria (CCC), a pan-European common symptom checklist, and implementation of prevalence-based cost-of-illness studies in different countries using an agreed data list. We recommend using purchasing power parities (PPP) to facilitate international comparisons, and EuroQol-5D as a generic measure of health status and multi-attribute utility instrument to inform future economic evaluations in ME/CFS. MDPI 2020-04-07 /pmc/articles/PMC7349118/ /pubmed/32272608 http://dx.doi.org/10.3390/healthcare8020088 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Review
Pheby, Derek F.H.
Araja, Diana
Berkis, Uldis
Brenna, Elenka
Cullinan, John
de Korwin, Jean-Dominique
Gitto, Lara
Hughes, Dyfrig A
Hunter, Rachael M
Trepel, Dominic
Wang-Steverding, Xia
The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)
title The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)
title_full The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)
title_fullStr The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)
title_full_unstemmed The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)
title_short The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)
title_sort development of a consistent europe-wide approach to investigating the economic impact of myalgic encephalomyelitis (me/cfs): a report from the european network on me/cfs (euromene)
topic Review
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7349118/
https://www.ncbi.nlm.nih.gov/pubmed/32272608
http://dx.doi.org/10.3390/healthcare8020088
work_keys_str_mv AT phebyderekfh thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT arajadiana thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT berkisuldis thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT brennaelenka thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT cullinanjohn thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT dekorwinjeandominique thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT gittolara thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT hughesdyfriga thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT hunterrachaelm thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT trepeldominic thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT wangsteverdingxia thedevelopmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT phebyderekfh developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT arajadiana developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT berkisuldis developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT brennaelenka developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT cullinanjohn developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT dekorwinjeandominique developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT gittolara developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT hughesdyfriga developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT hunterrachaelm developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT trepeldominic developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene
AT wangsteverdingxia developmentofaconsistenteuropewideapproachtoinvestigatingtheeconomicimpactofmyalgicencephalomyelitismecfsareportfromtheeuropeannetworkonmecfseuromene