Cargando…

Care Delivery for Children With Epilepsy During the COVID-19 Pandemic: An International Survey of Clinicians

OBJECTIVE: To evaluate the effect of the COVID-19 pandemic on global access to care and practice patterns for children with epilepsy. METHODS: We conducted a cross-sectional, online survey of pediatric neurologists across the world affiliated with the International Child Neurology Association, the C...

Descripción completa

Detalles Bibliográficos
Autores principales:	Wirrell, Elaine C., Grinspan, Zachary M., Knupp, Kelly G., Jiang, Yuwu, Hammeed, Biju, Mytinger, John R., Patel, Anup D., Nabbout, Rima, Specchio, Nicola, Cross, J. Helen, Shellhaas, Renée A.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	SAGE Publications 2020
Materias:	Original Articles
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7364331/ https://www.ncbi.nlm.nih.gov/pubmed/32666891 http://dx.doi.org/10.1177/0883073820940189

Ejemplares similares

An accelerated shift in the use of remote systems in epilepsy due to the COVID-19 pandemic
por: Kuchenbuch, Mathieu, et al.
Publicado: (2020)

3D figure of epilepsy syndromes
por: Nabbout, Rima, et al.
Publicado: (2022)

International consensus on diagnosis and management of Dravet syndrome
por: Wirrell, Elaine C., et al.
Publicado: (2022)

Why West? Comparisons of clinical, genetic and molecular features of infants with and without spasms
por: Berg, Anne T., et al.
Publicado: (2018)

Novel study design to assess the efficacy and tolerability of antiseizure medications for focal‐onset seizures in infants and young children: A consensus document from the regulatory task force and the pediatric commission of the International League against Epilepsy (ILAE), in collaboration with the Pediatric Epilepsy Research Consortium (PERC)
por: Auvin, Stéphane, et al.
Publicado: (2019)

Losing Sleep: Considering Caregivers of Children with Rare Epilepsy Syndromes
por: Gupta, Gita, et al.
Publicado: (2020)

Dravet Syndrome as an Example of Precision Medicine in Epilepsy
por: Sullivan, Joseph, et al.
Publicado: (2022)

Validating Coding for the Identification of Pediatric Treatment Resistant Epilepsy Patients
por: Freedman, Daniel A., et al.
Publicado: (2021)

Fenfluramine for Treatment-Resistant Seizures in Patients With Dravet Syndrome Receiving Stiripentol-Inclusive Regimens: A Randomized Clinical Trial
por: Nabbout, Rima, et al.
Publicado: (2020)

Temporal Lobe Epilepsy in Children
por: Nickels, Katherine C., et al.
Publicado: (2012)

Monogenic Epilepsies: Disease Mechanisms, Clinical Phenotypes, and Targeted Therapies
por: Guerrini, Renzo, et al.
Publicado: (2021)

Management of Infantile Spasms During the COVID-19 Pandemic
por: Grinspan, Zachary M., et al.
Publicado: (2020)

Whole‐exome and HLA sequencing in Febrile infection‐related epilepsy syndrome
por: Helbig, Ingo, et al.
Publicado: (2020)

Fatal Status Epilepticus in Dravet Syndrome
por: De Liso, Paola, et al.
Publicado: (2020)

Reply to Dravet, C. Different Outcomes of Acute Encephalopathy after Status Epilepticus in Patients with Dravet Syndrome. How to Avoid Them? Comment on “De Liso et al. Fatal Status Epilepticus in Dravet Syndrome. Brain Sci. 2020, 10, 889”
por: De Liso, Paola, et al.
Publicado: (2021)

EPINETLAB: A Software for Seizure-Onset Zone Identification From Intracranial EEG Signal in Epilepsy
por: Quitadamo, Lucia R., et al.
Publicado: (2018)

Impact of the COVID‐19 lockdown on patients and families with Dravet syndrome
por: Brambilla, Isabella, et al.
Publicado: (2021)

Proposal to optimize evaluation and treatment of Febrile infection‐related epilepsy syndrome (FIRES): A Report from FIRES workshop
por: Koh, Sookyong, et al.
Publicado: (2021)

COVID-19 in Patients With Seizures and Epilepsy: Interpretation of Relevant Knowledge of Presenting Signs and Symptoms
por: Hogan, Robert Edward, et al.
Publicado: (2020)

Lorcaserin therapy for severe epilepsy of childhood onset: A case series
por: Tolete, Patricia, et al.
Publicado: (2018)

Epilepsy and the Adolescent
por: Cross, Helen
Publicado: (2000)

Autism and Epilepsy in Patients With Tuberous Sclerosis Complex
por: Specchio, Nicola, et al.
Publicado: (2020)

Measuring Health-Related Quality of Life in Tuberous Sclerosis Complex – Psychometric Evaluation of Three Instruments in Individuals With Refractory Epilepsy
por: de Vries, Petrus J., et al.
Publicado: (2018)

Long-term safety and effectiveness of zonisamide in the treatment of epilepsy: a review of the literature
por: Zaccara, Gaetano, et al.
Publicado: (2009)

Cannabidiol Treatment for Refractory Epilepsies in Pediatrics
por: Raucci, Umberto, et al.
Publicado: (2020)

Molecular Genetics of Epilepsy: A Clinician's Perspective
por: Dhiman, Vikas
Publicado: (2017)

Encephalopathy in children with Dravet syndrome is not a pure consequence of epilepsy
por: Nabbout, Rima, et al.
Publicado: (2013)

The 50th anniversary of the Italian League against epilepsy (Lega Italiana Contro l’Epilessia)()
por: Tassi, Laura, et al.
Publicado: (2022)

POLG1-Related Epilepsy: Review of Diagnostic and Therapeutic Findings
por: Specchio, Nicola, et al.
Publicado: (2020)

Impact of COVID-19 pandemic on pediatric patients with epilepsy – The caregiver perspective
por: Trivisano, Marina, et al.
Publicado: (2020)

Genome wide high density SNP-based linkage analysis of childhood absence epilepsy identifies a susceptibility locus on chromosome 3p23-p14
por: Chioza, Barry A., et al.
Publicado: (2009)

Patient considerations in the management of focal seizures in children and adolescents
por: Kenney, Daniel, et al.
Publicado: (2014)

Imbalance of Systemic Redox Biomarkers in Children with Epilepsy: Role of Ferroptosis
por: Petrillo, Sara, et al.
Publicado: (2021)

Targeted Treatment in Childhood Epilepsy Syndromes
por: Vezyroglou, Katharina, et al.
Publicado: (2016)

COVID‐19 vaccine in patients with Dravet syndrome: Observations and real‐world experiences
por: Hood, Veronica, et al.
Publicado: (2022)

Fitness to drive in seizure and epilepsy: A protocol for Iranian clinicians
por: Tabrizi, Nasim
Publicado: (2019)

Refractory Status Epilepticus in Genetic Epilepsy—Is Vagus Nerve Stimulation an Option?
por: Specchio, Nicola, et al.
Publicado: (2020)

Current role of surgery for tuberous sclerosis complex‐associated epilepsy
por: Specchio, Nicola, et al.
Publicado: (2022)

International consensus recommendations for management of new onset refractory status epilepticus including febrile infection‐related epilepsy syndrome: Statements and supporting evidence
por: Wickstrom, Ronny, et al.
Publicado: (2022)

Epileptic Encephalopathies in Children
por: Tabarki, Brahim, et al.
Publicado: (2013)

Cannot write session to /tmp/vufind_sessions/sess_1e3teku9hlc3ghb7o0nnofukmo