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Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

The new coronavirus disease (COVID-19) pandemic is changing how society operates. Environmental changes, disrupted routines, and reduced access to services and social networks will have a unique impact on autistic individuals and their families and will contribute to significant deterioration in som...

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Autores principales: Ameis, Stephanie H., Lai, Meng-Chuan, Mulsant, Benoit H., Szatmari, Peter
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7374665/
https://www.ncbi.nlm.nih.gov/pubmed/32698850
http://dx.doi.org/10.1186/s13229-020-00365-y
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author Ameis, Stephanie H.
Lai, Meng-Chuan
Mulsant, Benoit H.
Szatmari, Peter
author_facet Ameis, Stephanie H.
Lai, Meng-Chuan
Mulsant, Benoit H.
Szatmari, Peter
author_sort Ameis, Stephanie H.
collection PubMed
description The new coronavirus disease (COVID-19) pandemic is changing how society operates. Environmental changes, disrupted routines, and reduced access to services and social networks will have a unique impact on autistic individuals and their families and will contribute to significant deterioration in some. Access to support is crucial to address vulnerability factors, guide adjustments in home environments, and apply mitigation strategies to improve coping. The current crisis highlights that our regular care systems are not sufficient to meet the needs of the autism communities. In many parts of the world, people have shifted to online school and increased use of remote delivery of healthcare and autism supports. Access to these services needs to be increased to mitigate the negative impact of COVID-19 and future epidemics/pandemics. The rapid expansion in the use of telehealth platforms can have a positive impact on both care and research. It can help to address key priorities for the autism communities including long waitlists for assessment and care, access to services in remote locations, and restricted hours of service. However, system-level changes are urgently needed to ensure equitable access and flexible care models, especially for families and individuals who are socioeconomically disadvantaged. COVID-19 mandates the use of technology to support a broader range of care options and better meet the diverse needs of autistic people and their families. It behooves us to use this crisis as an opportunity to foster resilience not only for a given individual or their family, but also the system: to drive enduring and autism-friendly changes in healthcare, social systems, and the broader socio-ecological contexts.
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spelling pubmed-73746652020-07-22 Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond Ameis, Stephanie H. Lai, Meng-Chuan Mulsant, Benoit H. Szatmari, Peter Mol Autism Commentary The new coronavirus disease (COVID-19) pandemic is changing how society operates. Environmental changes, disrupted routines, and reduced access to services and social networks will have a unique impact on autistic individuals and their families and will contribute to significant deterioration in some. Access to support is crucial to address vulnerability factors, guide adjustments in home environments, and apply mitigation strategies to improve coping. The current crisis highlights that our regular care systems are not sufficient to meet the needs of the autism communities. In many parts of the world, people have shifted to online school and increased use of remote delivery of healthcare and autism supports. Access to these services needs to be increased to mitigate the negative impact of COVID-19 and future epidemics/pandemics. The rapid expansion in the use of telehealth platforms can have a positive impact on both care and research. It can help to address key priorities for the autism communities including long waitlists for assessment and care, access to services in remote locations, and restricted hours of service. However, system-level changes are urgently needed to ensure equitable access and flexible care models, especially for families and individuals who are socioeconomically disadvantaged. COVID-19 mandates the use of technology to support a broader range of care options and better meet the diverse needs of autistic people and their families. It behooves us to use this crisis as an opportunity to foster resilience not only for a given individual or their family, but also the system: to drive enduring and autism-friendly changes in healthcare, social systems, and the broader socio-ecological contexts. BioMed Central 2020-07-22 /pmc/articles/PMC7374665/ /pubmed/32698850 http://dx.doi.org/10.1186/s13229-020-00365-y Text en © The Author(s) 2020 Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
spellingShingle Commentary
Ameis, Stephanie H.
Lai, Meng-Chuan
Mulsant, Benoit H.
Szatmari, Peter
Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond
title Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond
title_full Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond
title_fullStr Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond
title_full_unstemmed Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond
title_short Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond
title_sort coping, fostering resilience, and driving care innovation for autistic people and their families during the covid-19 pandemic and beyond
topic Commentary
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7374665/
https://www.ncbi.nlm.nih.gov/pubmed/32698850
http://dx.doi.org/10.1186/s13229-020-00365-y
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