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Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability

BACKGROUND: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method – Intellectual Disability (FNM‐ID) offers a way to gather the perspective of people with mild intellectual disab...

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Autores principales: Giesbers, Sanne A. H., Tournier, Tess, Hendriks, Lex, Hastings, Richard P., Jahoda, Andrew, Embregts, Petri J. C. M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7379605/
https://www.ncbi.nlm.nih.gov/pubmed/30004149
http://dx.doi.org/10.1111/jar.12512
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author Giesbers, Sanne A. H.
Tournier, Tess
Hendriks, Lex
Hastings, Richard P.
Jahoda, Andrew
Embregts, Petri J. C. M.
author_facet Giesbers, Sanne A. H.
Tournier, Tess
Hendriks, Lex
Hastings, Richard P.
Jahoda, Andrew
Embregts, Petri J. C. M.
author_sort Giesbers, Sanne A. H.
collection PubMed
description BACKGROUND: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method – Intellectual Disability (FNM‐ID) offers a way to gather the perspective of people with mild intellectual disability on their family support. METHOD: The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts. RESULTS: By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM‐ID can be analysed using social network analysis. Thereby, the FNM‐ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability. CONCLUSIONS: The FNM‐ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability.
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spelling pubmed-73796052020-07-24 Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability Giesbers, Sanne A. H. Tournier, Tess Hendriks, Lex Hastings, Richard P. Jahoda, Andrew Embregts, Petri J. C. M. J Appl Res Intellect Disabil Original Articles BACKGROUND: Informal supportive networks of individuals with intellectual disability have become increasingly important. The aim of this paper is to describe how the Family Network Method – Intellectual Disability (FNM‐ID) offers a way to gather the perspective of people with mild intellectual disability on their family support. METHOD: The FNM is designed to explore how individuals define their family contexts, and more specifically how they perceive existing supportive relationships in these contexts. RESULTS: By carefully piloting ways of questioning people with mild intellectual disability, systematic adaptations were made to the original FNM. Data obtained by the FNM‐ID can be analysed using social network analysis. Thereby, the FNM‐ID provides rich, theoretically significant information on emotional support in the family networks of individuals with mild intellectual disability. CONCLUSIONS: The FNM‐ID is a useful and successfully adapted tool for other researchers and professionals to systematically explore the family support experiences of individuals with mild intellectual disability. John Wiley and Sons Inc. 2018-07-13 2019-01 /pmc/articles/PMC7379605/ /pubmed/30004149 http://dx.doi.org/10.1111/jar.12512 Text en 2018 The Authors. Journal of Applied Research in Intellectual Disabilities Published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Giesbers, Sanne A. H.
Tournier, Tess
Hendriks, Lex
Hastings, Richard P.
Jahoda, Andrew
Embregts, Petri J. C. M.
Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability
title Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability
title_full Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability
title_fullStr Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability
title_full_unstemmed Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability
title_short Measuring emotional support in family networks: Adapting the Family Network Method for individuals with a mild intellectual disability
title_sort measuring emotional support in family networks: adapting the family network method for individuals with a mild intellectual disability
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7379605/
https://www.ncbi.nlm.nih.gov/pubmed/30004149
http://dx.doi.org/10.1111/jar.12512
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