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Living with support: Experiences of people with mild intellectual disability

BACKGROUND: To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks. METHOD: Six individuals with mild intellectual disability, living in community‐based s...

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Detalles Bibliográficos
Autores principales: Giesbers, Sanne A. H., Hendriks, Lex, Jahoda, Andrew, Hastings, Richard P., Embregts, Petri J. C. M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2018
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7379989/
https://www.ncbi.nlm.nih.gov/pubmed/30362653
http://dx.doi.org/10.1111/jar.12542
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author Giesbers, Sanne A. H.
Hendriks, Lex
Jahoda, Andrew
Hastings, Richard P.
Embregts, Petri J. C. M.
author_facet Giesbers, Sanne A. H.
Hendriks, Lex
Jahoda, Andrew
Hastings, Richard P.
Embregts, Petri J. C. M.
author_sort Giesbers, Sanne A. H.
collection PubMed
description BACKGROUND: To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks. METHOD: Six individuals with mild intellectual disability, living in community‐based settings, were interviewed following a semi‐structured format. In‐depth accounts of participants’ support experiences were established using Interpretative Phenomenological Analysis. RESULTS: Three main themes were identified: relationships with staff placed within a personal history, relationships with staff within an organisational context, and staff support and interviewees’ place in the world. CONCLUSIONS: Relationships with staff were often one of the closest and most significant social relationships participants had. As living in the community had not necessarily led to meaningful inclusion for participants, the findings point at the important role of staff in supporting and facilitating friendships and close relationships of people with intellectual disability.
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spelling pubmed-73799892020-07-27 Living with support: Experiences of people with mild intellectual disability Giesbers, Sanne A. H. Hendriks, Lex Jahoda, Andrew Hastings, Richard P. Embregts, Petri J. C. M. J Appl Res Intellect Disabil Original Articles BACKGROUND: To enhance social inclusion of people with intellectual disability, policy is aimed at increasing informal support networks. Nevertheless, staff continue to play a vital role in their support networks. METHOD: Six individuals with mild intellectual disability, living in community‐based settings, were interviewed following a semi‐structured format. In‐depth accounts of participants’ support experiences were established using Interpretative Phenomenological Analysis. RESULTS: Three main themes were identified: relationships with staff placed within a personal history, relationships with staff within an organisational context, and staff support and interviewees’ place in the world. CONCLUSIONS: Relationships with staff were often one of the closest and most significant social relationships participants had. As living in the community had not necessarily led to meaningful inclusion for participants, the findings point at the important role of staff in supporting and facilitating friendships and close relationships of people with intellectual disability. John Wiley and Sons Inc. 2018-10-26 2019-03 /pmc/articles/PMC7379989/ /pubmed/30362653 http://dx.doi.org/10.1111/jar.12542 Text en © 2018 The Authors. Journal of Applied Research in Intellectual Disabilities Published by John Wiley & Sons Ltd This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.
spellingShingle Original Articles
Giesbers, Sanne A. H.
Hendriks, Lex
Jahoda, Andrew
Hastings, Richard P.
Embregts, Petri J. C. M.
Living with support: Experiences of people with mild intellectual disability
title Living with support: Experiences of people with mild intellectual disability
title_full Living with support: Experiences of people with mild intellectual disability
title_fullStr Living with support: Experiences of people with mild intellectual disability
title_full_unstemmed Living with support: Experiences of people with mild intellectual disability
title_short Living with support: Experiences of people with mild intellectual disability
title_sort living with support: experiences of people with mild intellectual disability
topic Original Articles
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7379989/
https://www.ncbi.nlm.nih.gov/pubmed/30362653
http://dx.doi.org/10.1111/jar.12542
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