Cargando…

A Telerehabilitation Intervention for Youths With Arthrogryposis Multiplex Congenita: Protocol for a Pilot Study

BACKGROUND: Arthrogryposis multiplex congenita (AMC) is characterized by joint contractures present in at least two body areas. In addition to these contractures, individuals with AMC can have decreased muscle mass, leading to limitations in activities of daily living. Exercise has the potential to...

Descripción completa

Detalles Bibliográficos
Autores principales:	Gagnon, Marianne, Collins, Jessica, Elfassy, Caroline, Marino Merlo, Gabriela, Marsh, Jacquelyn, Sawatzky, Bonita, Yap, Rita, Hamdy, Reggie, Veilleux, Louis-Nicolas, Dahan-Oliel, Noémi
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2020
Materias:	Protocol
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7381253/ https://www.ncbi.nlm.nih.gov/pubmed/32589157 http://dx.doi.org/10.2196/18688

Ejemplares similares

Using Telerehabilitation to Deliver a Home Exercise Program to Youth With Arthrogryposis: Single Cohort Pilot Study
por: Gagnon, Marianne, et al.
Publicado: (2021)

Measurement Repeatability and Reproducibility of Virtual Goniometry of a Set of Acquired Images in Youths with Arthrogryposis Multiplex Congenita
por: Gagnon, Marianne, et al.
Publicado: (2023)

Development of a research platform for children with arthrogryposis multiplex congenita: study protocol for a pilot registry
por: Dahan-Oliel, Noémi, et al.
Publicado: (2018)

International multidisciplinary collaboration toward an annotated definition of arthrogryposis multiplex congenita
por: Dahan‐Oliel, Noémi, et al.
Publicado: (2019)

Epidemiology, aetiology, interventions and genomics in children with arthrogryposis multiplex congenita: protocol for a multisite registry
por: Dahan-Oliel, Noémi, et al.
Publicado: (2022)

A Genomic Approach to Delineating the Occurrence of Scoliosis in Arthrogryposis Multiplex Congenita
por: Latypova, Xenia, et al.
Publicado: (2021)

Arthrogryposis multiplex congenita—an update
por: Møller-Madsen, Bjarne
Publicado: (2015)

Arthrogryposis multiplex congenita: An anesthetic challenge
por: Pujari, Vinayak Seenappa, et al.
Publicado: (2012)

Diagnosing Arthrogryposis Multiplex Congenita: A Review
por: Kalampokas, Emmanouil, et al.
Publicado: (2012)

Walking ability in patients with arthrogryposis multiplex congenita
por: Eamsobhana, Perajit, et al.
Publicado: (2014)

Arthrogryposis Multiplex Congenita: Multiple Congenital Joint Contractures
por: Sucuoglu, Hamza, et al.
Publicado: (2015)

Long-term outcome for patients with arthrogryposis multiplex congenita
por: Dubousset, Jean, et al.
Publicado: (2015)

Phenotypic spectrum and genomics of undiagnosed arthrogryposis multiplex congenita
por: Laquerriere, Annie, et al.
Publicado: (2022)

Maternal myasthenia gravis: a cause for arthrogryposis multiplex congenita
por: Midelfart Hoff, Jana, et al.
Publicado: (2015)

Prognostic significance of prenatal ultrasound in fetal arthrogryposis multiplex congenita
por: Busack, Brit, et al.
Publicado: (2020)

Arthrogryposis multiplex congenita with maxillofacial involvement: a case report
por: Cirillo, Stefano, et al.
Publicado: (2023)

Anesthetic management of a neonate with arthrogryposis multiplex congenita for emergency laparotomy
por: Chowdhuri, Rajat, et al.
Publicado: (2011)

Anesthesia in patients with arthrogryposis multiplex congenita: a report of 10 patients
por: Jung, Jae Woong, et al.
Publicado: (2014)

Feasibility and Challenges of Performing Magnetoencephalography Experiments in Children With Arthrogryposis Multiplex Congenita
por: Golosheykin, Semyon A., et al.
Publicado: (2021)

Locomotion and Topographical Working Memory in Children With Myelomeningocele and Arthrogryposis Multiplex Congenita
por: Bartonek, Åsa, et al.
Publicado: (2021)

Novel Arthrogryposis Multiplex Congenita Presentation in a Newborn With Pierpont Syndrome
por: Pereira-Nunes, Joana, et al.
Publicado: (2023)

Rehabilitation in Patients Diagnosed with Arthrogryposis Multiplex Congenita: A Systematic Review
por: García Aguilar, Catalina E., et al.
Publicado: (2023)

OPEN REDUCTION OF HIP DISLOCATION IN PATIENTS WITH ARTHROGRYPOSIS MULTIPLEX CONGENITA – AN ANTEROMEDIAL APPROACH
por: Rocha, Luis Eduardo Munhoz da, et al.
Publicado: (2015)

Falls and Associated Factors among Adolescents and Young Adults with Arthrogryposis Multiplex Congenita
por: Sions, Jaclyn Megan, et al.
Publicado: (2021)

Arthrogryposis multiplex congenita in a child with congenital fractures: a case report
por: Dayasiri, Kavinda, et al.
Publicado: (2022)

Psychosocial wellbeing among children and adults with arthrogryposis: a scoping review
por: Cachecho, Sarah, et al.
Publicado: (2021)

Epidural anesthesia for labor pain and cesarean section in a parturient with arthrogryposis multiplex congenita
por: Sadacharam, Kesavan, et al.
Publicado: (2016)

Patient and Parent Experiences with Group Telerehabilitation for Child Survivors of Acute Lymphoblastic Leukemia
por: Lambert, Genevieve, et al.
Publicado: (2021)

Expert guidance for the rehabilitation of children with arthrogryposis: protocol using an integrated knowledge translation approach
por: Dahan-Oliel, Noémi, et al.
Publicado: (2022)

Effectiveness and Safety of Botulinum Toxin Type A in Children with Musculoskeletal Conditions: What Is the Current State of Evidence?
por: Dahan-Oliel, Noémi, et al.
Publicado: (2012)

Arthrogryposis Multiplex Congenita Related to Third-Trimester Basal Ganglia Ischemia: A Case Report
por: Venot, Perrine, et al.
Publicado: (2015)

Arthrogryposis multiplex congenita with polymicrogyria and infantile encephalopathy caused by a novel GRIN1 variant
por: Nishimura, Naoto, et al.
Publicado: (2020)

Test–retest reliability for performance-based outcome measures among individuals with arthrogryposis multiplex congenita
por: Sions, Jaclyn Megan, et al.
Publicado: (2022)

Abstract 73: A case report of mitochondrial diabetes. arthrogryposis multiplex congenita, diabetes and deafness
por: Haritha, G, et al.
Publicado: (2022)

Short-term functional outcome in children with arthrogryposis multiplex congenita after multiple surgeries at an early age
por: Obeidat, Moutasem M, et al.
Publicado: (2012)

A CHRNB1 frameshift mutation is associated with familial arthrogryposis multiplex congenita in Red dairy cattle
por: Agerholm, Jørgen S., et al.
Publicado: (2016)

Total joint replacement of the hip and knee in patients with arthrogryposis multiplex congenita: a report of six joints
por: Theil, Christoph, et al.
Publicado: (2020)

Homozygous loss-of-function variants in FILIP1 cause autosomal recessive arthrogryposis multiplex congenita with microcephaly
por: Schnabel, Franziska, et al.
Publicado: (2023)

A rare case of arthrogryposis multiplex congenita in a 2-year-old boy case report
por: Waseem, Asfia, et al.
Publicado: (2023)

The Design, Development, and Usability Testing of an eHealth Program for Youths With Osteogenesis Imperfecta: Protocol for a 2-Phase User-Centered Mixed Methods Study
por: Tsimicalis, Argerie, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_tv6u3am6m1f5ei2raesttsh0ae