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Reference Values of the QOLIBRI from General Population Samples in the United Kingdom and The Netherlands

The Quality of Life after Traumatic Brain Injury (QOLIBRI) instrument is an internationally validated patient-reported outcome measure for assessing disease-specific health-related quality of life (HRQoL) in individuals after traumatic brain injury (TBI). However, no reference values for general pop...

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Autores principales: Gorbunova, Anastasia, Zeldovich, Marina, Voormolen, Daphne C., Krenz, Ugne, Polinder, Suzanne, Haagsma, Juanita A., Hagmayer, York, Covic, Amra, Real, Ruben G. L., Asendorf, Thomas, von Steinbuechel, Nicole
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7408671/
https://www.ncbi.nlm.nih.gov/pubmed/32635328
http://dx.doi.org/10.3390/jcm9072100
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author Gorbunova, Anastasia
Zeldovich, Marina
Voormolen, Daphne C.
Krenz, Ugne
Polinder, Suzanne
Haagsma, Juanita A.
Hagmayer, York
Covic, Amra
Real, Ruben G. L.
Asendorf, Thomas
von Steinbuechel, Nicole
author_facet Gorbunova, Anastasia
Zeldovich, Marina
Voormolen, Daphne C.
Krenz, Ugne
Polinder, Suzanne
Haagsma, Juanita A.
Hagmayer, York
Covic, Amra
Real, Ruben G. L.
Asendorf, Thomas
von Steinbuechel, Nicole
author_sort Gorbunova, Anastasia
collection PubMed
description The Quality of Life after Traumatic Brain Injury (QOLIBRI) instrument is an internationally validated patient-reported outcome measure for assessing disease-specific health-related quality of life (HRQoL) in individuals after traumatic brain injury (TBI). However, no reference values for general populations are available yet for use in clinical practice and research in the field of TBI. The aim of the present study was, therefore, to establish these reference values for the United Kingdom (UK) and the Netherlands (NL). For this purpose, an online survey with a reworded version of the QOLIBRI for general populations was used to collect data on 4403 individuals in the UK and 3399 in the NL. This QOLIBRI version was validated by inspecting descriptive statistics, psychometric criteria, and comparability of the translations to the original version. In particular, measurement invariance (MI) was tested to examine whether the items of the instrument were understood in the same way by different individuals in the general population samples and in the TBI sample across the two countries, which is necessary in order to establish reference values. In the general population samples, the reworded QOLIBRI displayed good psychometric properties, including MI across countries and in the non-TBI and TBI samples. Therefore, differences in the QOLIBRI scores can be attributed to real differences in HRQoL. Individuals with and without a chronic health condition did differ significantly, with the latter reporting lower HRQoL. In conclusion, we provided reference values for healthy individuals and individuals with at least one chronic condition from general population samples in the UK and the NL. These can be used in the interpretation of disease-specific HRQoL assessments after TBI applying the QOLIBRI on the individual level in clinical as well as research contexts.
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spelling pubmed-74086712020-08-13 Reference Values of the QOLIBRI from General Population Samples in the United Kingdom and The Netherlands Gorbunova, Anastasia Zeldovich, Marina Voormolen, Daphne C. Krenz, Ugne Polinder, Suzanne Haagsma, Juanita A. Hagmayer, York Covic, Amra Real, Ruben G. L. Asendorf, Thomas von Steinbuechel, Nicole J Clin Med Article The Quality of Life after Traumatic Brain Injury (QOLIBRI) instrument is an internationally validated patient-reported outcome measure for assessing disease-specific health-related quality of life (HRQoL) in individuals after traumatic brain injury (TBI). However, no reference values for general populations are available yet for use in clinical practice and research in the field of TBI. The aim of the present study was, therefore, to establish these reference values for the United Kingdom (UK) and the Netherlands (NL). For this purpose, an online survey with a reworded version of the QOLIBRI for general populations was used to collect data on 4403 individuals in the UK and 3399 in the NL. This QOLIBRI version was validated by inspecting descriptive statistics, psychometric criteria, and comparability of the translations to the original version. In particular, measurement invariance (MI) was tested to examine whether the items of the instrument were understood in the same way by different individuals in the general population samples and in the TBI sample across the two countries, which is necessary in order to establish reference values. In the general population samples, the reworded QOLIBRI displayed good psychometric properties, including MI across countries and in the non-TBI and TBI samples. Therefore, differences in the QOLIBRI scores can be attributed to real differences in HRQoL. Individuals with and without a chronic health condition did differ significantly, with the latter reporting lower HRQoL. In conclusion, we provided reference values for healthy individuals and individuals with at least one chronic condition from general population samples in the UK and the NL. These can be used in the interpretation of disease-specific HRQoL assessments after TBI applying the QOLIBRI on the individual level in clinical as well as research contexts. MDPI 2020-07-03 /pmc/articles/PMC7408671/ /pubmed/32635328 http://dx.doi.org/10.3390/jcm9072100 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Gorbunova, Anastasia
Zeldovich, Marina
Voormolen, Daphne C.
Krenz, Ugne
Polinder, Suzanne
Haagsma, Juanita A.
Hagmayer, York
Covic, Amra
Real, Ruben G. L.
Asendorf, Thomas
von Steinbuechel, Nicole
Reference Values of the QOLIBRI from General Population Samples in the United Kingdom and The Netherlands
title Reference Values of the QOLIBRI from General Population Samples in the United Kingdom and The Netherlands
title_full Reference Values of the QOLIBRI from General Population Samples in the United Kingdom and The Netherlands
title_fullStr Reference Values of the QOLIBRI from General Population Samples in the United Kingdom and The Netherlands
title_full_unstemmed Reference Values of the QOLIBRI from General Population Samples in the United Kingdom and The Netherlands
title_short Reference Values of the QOLIBRI from General Population Samples in the United Kingdom and The Netherlands
title_sort reference values of the qolibri from general population samples in the united kingdom and the netherlands
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7408671/
https://www.ncbi.nlm.nih.gov/pubmed/32635328
http://dx.doi.org/10.3390/jcm9072100
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