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The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders

PURPOSE: To report completeness of registered surgeries in the Danish hip arthroscopy registry (DHAR) and proportion of patients completing patient-reported outcome measures (PROMs) prior to surgery and at 1-year follow-up. PATIENTS AND METHODS: Completeness was determined as the number of surgeries...

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Autores principales: Poulsen, Erik, Lund, Bent, Roos, Ewa M
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7414940/
https://www.ncbi.nlm.nih.gov/pubmed/32801920
http://dx.doi.org/10.2147/CLEP.S264683
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author Poulsen, Erik
Lund, Bent
Roos, Ewa M
author_facet Poulsen, Erik
Lund, Bent
Roos, Ewa M
author_sort Poulsen, Erik
collection PubMed
description PURPOSE: To report completeness of registered surgeries in the Danish hip arthroscopy registry (DHAR) and proportion of patients completing patient-reported outcome measures (PROMs) prior to surgery and at 1-year follow-up. PATIENTS AND METHODS: Completeness was determined as the number of surgeries registered in DHAR in comparison with the number of surgeries registered in the Danish National Patient Registry database (DNPR). The number of patients self-reporting pre-surgical PROMs was compared to the total number of surgeries registered in DHAR. Further, we evaluated potential differences in baseline characteristics between the groups of responders and non-responders at 1-year follow-up. Patient characteristics included age, sex, activity levels measured by the hip sports activity scale (HSAS), and PROMs (Copenhagen Hip and Groin Outcome Score, EQ-5D-3L and general hip status). Age was stratified in three groups (<25, 25–39, ≥40). RESULTS: From February 2012 to September 2018, 5565 arthroscopic hip surgeries were registered in DNPR, and 4937 were registered in DHAR (89%). The yearly rate of registrations in DHAR compared to DNPR increased from 77% in 2012 to 85% in 2018 and peaking in 2015 at 94%. A total of 3294 DHAR-registered patients (67%) had self-reported their pre-surgical outcome scores, and of those, 2886 (58%) completed PROMs at 1-year follow-up. More males (45 vs 41%, p = 0.002) and individuals younger than 25 years of age (24% vs 18%, p<0.001) had not completed follow-up questionnaire. The PROM baseline scores of the responders at follow-up did not differ from the non-responders. CONCLUSION: The proportion of arthroscopic hip surgeries registered in the Danish Hip Arthroscopy Registry and the proportion of self-reporting PROM scores have increased to acceptable levels, whereas the proportion of patients with follow-up data is comparably low. For further quality improvement, more attention should be given to patients completing PROMs, focusing on younger males and follow-up PROMs.
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spelling pubmed-74149402020-08-14 The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders Poulsen, Erik Lund, Bent Roos, Ewa M Clin Epidemiol Original Research PURPOSE: To report completeness of registered surgeries in the Danish hip arthroscopy registry (DHAR) and proportion of patients completing patient-reported outcome measures (PROMs) prior to surgery and at 1-year follow-up. PATIENTS AND METHODS: Completeness was determined as the number of surgeries registered in DHAR in comparison with the number of surgeries registered in the Danish National Patient Registry database (DNPR). The number of patients self-reporting pre-surgical PROMs was compared to the total number of surgeries registered in DHAR. Further, we evaluated potential differences in baseline characteristics between the groups of responders and non-responders at 1-year follow-up. Patient characteristics included age, sex, activity levels measured by the hip sports activity scale (HSAS), and PROMs (Copenhagen Hip and Groin Outcome Score, EQ-5D-3L and general hip status). Age was stratified in three groups (<25, 25–39, ≥40). RESULTS: From February 2012 to September 2018, 5565 arthroscopic hip surgeries were registered in DNPR, and 4937 were registered in DHAR (89%). The yearly rate of registrations in DHAR compared to DNPR increased from 77% in 2012 to 85% in 2018 and peaking in 2015 at 94%. A total of 3294 DHAR-registered patients (67%) had self-reported their pre-surgical outcome scores, and of those, 2886 (58%) completed PROMs at 1-year follow-up. More males (45 vs 41%, p = 0.002) and individuals younger than 25 years of age (24% vs 18%, p<0.001) had not completed follow-up questionnaire. The PROM baseline scores of the responders at follow-up did not differ from the non-responders. CONCLUSION: The proportion of arthroscopic hip surgeries registered in the Danish Hip Arthroscopy Registry and the proportion of self-reporting PROM scores have increased to acceptable levels, whereas the proportion of patients with follow-up data is comparably low. For further quality improvement, more attention should be given to patients completing PROMs, focusing on younger males and follow-up PROMs. Dove 2020-08-04 /pmc/articles/PMC7414940/ /pubmed/32801920 http://dx.doi.org/10.2147/CLEP.S264683 Text en © 2020 Poulsen et al. http://creativecommons.org/licenses/by-nc/3.0/ This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms (https://www.dovepress.com/terms.php).
spellingShingle Original Research
Poulsen, Erik
Lund, Bent
Roos, Ewa M
The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders
title The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders
title_full The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders
title_fullStr The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders
title_full_unstemmed The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders
title_short The Danish Hip Arthroscopy Registry: Registration Completeness and Patient Characteristics Between Responders and Non-Responders
title_sort danish hip arthroscopy registry: registration completeness and patient characteristics between responders and non-responders
topic Original Research
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7414940/
https://www.ncbi.nlm.nih.gov/pubmed/32801920
http://dx.doi.org/10.2147/CLEP.S264683
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