Cargando…

Patient-reported outcome measures for retinoblastoma: a scoping review

BACKGROUND: Retinoblastoma is a childhood retinal cancer with lifelong consequences such as vision loss and increased risk of second cancer. Patient-reported outcome measures (PROMs) are instruments that measure outcomes related to health directly reported by patients. The purpose of this study was...

Descripción completa

Detalles Bibliográficos
Autores principales:	Janic, Ana, Bowden, Sylvie, Levy, Sarah, Stinson, Jennifer, Dimaras, Helen
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	Springer International Publishing 2020
Materias:	Review
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7415058/ https://www.ncbi.nlm.nih.gov/pubmed/32770435 http://dx.doi.org/10.1186/s41687-020-00232-7

Ejemplares similares

Retinoblastoma genetics in India: From research to implementation
por: Dimaras, Helen
Publicado: (2015)

Referral patterns for retinoblastoma patients in Ethiopia
por: Sherief, Sadik Taju, et al.
Publicado: (2023)

Retinoblastoma Referral Pattern in Kenya
por: Nyamori, Joseph M., et al.
Publicado: (2014)

Patient knowledge, experiences and preferences regarding retinoblastoma and research: A qualitative study
por: Moses, Catherine, et al.
Publicado: (2020)

Lessons for Patient Engagement in Research in Low- and Middle-Income Countries
por: Janic, Ana, et al.
Publicado: (2020)

Health Services Needs Assessment for Retinoblastoma in Ethiopia
por: Sherief, Sadik Taju, et al.
Publicado: (2023)

The Canadian retinoblastoma research advisory board: a framework for patient engagement
por: Gelkopf, Maxwell J., et al.
Publicado: (2020)

Prenatal Diagnosis of Retinoblastomas: A Scoping Review
por: Rodriguez, Aurora, et al.
Publicado: (2023)

Retinoblastoma: The Evidence Does Matter
por: Prigoda-Leea, Nadia L., et al.
Publicado: (2009)

Re: Metastatic deaths in retinoblastoma patients treated with intraarterial chemotherapy (ophthalmic artery chemosurgery) worldwide
por: Soliman, Sameh E., et al.
Publicado: (2018)

Characterization of international partnerships in global retinoblastoma care and research: A network analysis
por: Girdler, Hannah, et al.
Publicado: (2021)

Incidence and geographic distribution of retinoblastoma in Ethiopia
por: Sherief, Sadik Taju, et al.
Publicado: (2023)

Achieving optimal cancer outcomes in East Africa through multidisciplinary partnership: a case study of the Kenyan National Retinoblastoma Strategy group
por: Hill, Jessica A., et al.
Publicado: (2016)

Patient-Reported Outcome Measures of Psychosocial Quality of Life in Oropharyngeal Cancer Patients: A Scoping Review
por: Silver, Jennifer A., et al.
Publicado: (2023)

Patient involvement in the development of patient‐reported outcome measures: a scoping review
por: Wiering, Bianca, et al.
Publicado: (2016)

Inventory of Patient-Reported Outcome Measures Used in the Non-Operative Care of Scoliosis: A Scoping Review
por: Parent, Eric C., et al.
Publicado: (2023)

Retinoblastoma
por: Aerts, Isabelle, et al.
Publicado: (2006)

Improving the Understanding and Managing of the Quality of Life of Patients With Lung Cancer With Electronic Patient-Reported Outcome Measures: Scoping Review
por: García Abejas, Abel, et al.
Publicado: (2023)

Social Media Interventions for Nutrition Education Among Adolescents: Scoping Review
por: Kulandaivelu, Yalinie, et al.
Publicado: (2023)

Spotlight on Targeted Chemotherapy in Retinoblastoma: Safety, Efficacy, and Patient Outcomes
por: Naseripour, Masood, et al.
Publicado: (2022)

Asynchronous pineoblastoma is more likely after early diagnosis of retinoblastoma: a meta‐analysis
por: de Jong, Marcus C., et al.
Publicado: (2021)

Performance Outcome Measures in Padel: A Scoping Review
por: García-Giménez, Alejandro, et al.
Publicado: (2022)

Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments
por: Martin-Delgado, Jimmy, et al.
Publicado: (2021)

Aqueous Humor Markers in Retinoblastoma, a Review
por: Ghiam, Benjamin K., et al.
Publicado: (2019)

Pharmacotherapy for Retinoblastoma
por: Shahsavari, Mohsen, et al.
Publicado: (2009)

Neonatal Retinoblastoma
por: Kivelä, Tero T., et al.
Publicado: (2017)

Retinoblastoma and vision
por: Warda, Omar, et al.
Publicado: (2022)

Response rates in clinical quality registries and databases that collect patient reported outcome measures: a scoping review
por: Ruseckaite, Rasa, et al.
Publicado: (2023)

Genetics in ophthalmology: molecular blueprints of retinoblastoma
por: Marković, Leon, et al.
Publicado: (2023)

The Impact of Cell-Free DNA Analysis on the Management of Retinoblastoma
por: Gerrish, Amy, et al.
Publicado: (2021)

Sarcomas in hereditary retinoblastoma
por: Kleinerman, Ruth A, et al.
Publicado: (2012)

Wearable technologies to measure clinical outcomes in multiple sclerosis: A scoping review
por: Alexander, Sarah, et al.
Publicado: (2020)

Patient Reported Outcome Measures in Dysphagia Research Following Stroke: A Scoping Review and Qualitative Analysis
por: Moloney, Jennifer, et al.
Publicado: (2022)

CircRNA-Associated CeRNAs Regulatory Axes in Retinoblastoma: A Systematic Scoping Review
por: Asadi, Mohammad Reza, et al.
Publicado: (2022)

Review: New horizons in retinoblastoma treatment: an updated review article
por: Azimi, Fatemeh, et al.
Publicado: (2022)

Modern treatment of retinoblastoma: A 2020 review
por: Ancona-Lezama, David, et al.
Publicado: (2020)

HPV infections in retinoblastoma: a systematic review
por: Soltani, Saber, et al.
Publicado: (2021)

Long-term patient-reported outcomes and patient-reported outcome measures after injury: the National Trauma Research Action Plan (NTRAP) scoping review
por: Herrera-Escobar, Juan P., et al.
Publicado: (2021)

Patient-reported outcome measures in diabetes outpatient care: a scoping review
por: Torbjørnsen, Astrid, et al.
Publicado: (2023)

Risk of Second Tumors in Retinoblastoma Survivors after Ionizing Radiation: A Review
por: Figueiredo, Diana, et al.
Publicado: (2023)

Cannot write session to /tmp/vufind_sessions/sess_nbjhjmalnt1m1i3dp9hsq5p70b